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利益相关者对针对青少年抑郁症和自杀倾向的数字行为健康应用的看法:政策制定者、提供者和社区的见解。

Stakeholder perspectives on digital behavioral health applications targeting adolescent depression and suicidality: Policymaker, provider, and community insights.

作者信息

Radovic Ana, Kirk-Johnson Afton, Coren Morgan, George-Milford Brandie, Kolko David

机构信息

Adolescent Medicine, UPMC Children's Hospital of Pittsburgh, Pittsburgh, PA, USA.

University of Pittsburgh School of Medicine, Pittsburgh, PA, USA.

出版信息

Implement Res Pract. 2022 Sep 7;3:26334895221120796. doi: 10.1177/26334895221120796. eCollection 2022 Jan-Dec.

Abstract

BACKGROUND

With adolescent depression and suicidality increasing, technology-based interventions may help address mental health needs. The Enhancing Treatment and Utilization for Depression and Emergent Suicidality (ETUDES) Center supports development of technology interventions to help primary care providers target these problems. To successfully develop and integrate such interventions into primary care, iterative engagement of stakeholders is necessary. This paper outlines our stakeholder engagement process, a qualitative analysis of feedback and outcomes, and how feedback was incorporated to develop Center interventions.

METHODS

Stakeholder panels represented key end-users of ETUDES Center interventions (adolescents, young adults, parents, and healthcare providers) and their advocates at the organizational/policy level. Meetings were held throughout intervention development and at annual retreats. Detailed meeting notes were collected and summarized by the stakeholder engagement team in real time, after which action items were generated and reviewed by the full research team. Using a content analysis approach, all stakeholder feedback summaries were coded using a prespecified codebook organized by recurring topics. Codes were organized under the Consolidated Framework for Implementation Research (CFIR). Anonymous stakeholder feedback surveys assessed relevance of topics, meeting effectiveness, and stakeholder involvement.

RESULTS

Stakeholder meetings provided feedback on topics such as representation, language, access to care, and stigma. Relevant feedback and recommendations were incorporated into subsequent iterations of the interventions and their implementation. Mean stakeholder ratings of meeting proceedings on a 0-3 Likert scale ranged from 1.70 (  =  0.10) for participation to 2.43 (  =  0.08) for effectiveness in addressing meeting agenda.

CONCLUSIONS

The iterative engagement approach yielded practical feedback from stakeholders about ETUDES Center interventions. The team organized feedback to identify barriers and facilitators to using Center interventions and to generate action items, which were transposed onto components of an implementation strategy, supplemented by the CFIR-ERIC Implementation Strategy Matching Tool. Stakeholder feedback will direct the future development of an integrated intervention and guide further stakeholder engagement in developing technologies for adolescent mental health. Depression and suicide in teens have been on the rise for the past several years. Primary care may be an ideal place to address these concerns because most teens have a primary care provider (PCP) who can offer a confidential place for both teens and their caregivers. Our Center develops technology-based interventions to help PCPs address teen depression and suicidality. Multiple barriers may hinder PCPs in addressing teen depression and suicidality. This paper describes how we engaged multiple types of stakeholders-or individuals with an interest in adolescent mental health-to ask for their feedback over a series of meetings, to help us improve the fit of our interventions to this population. Stakeholders included providers, community members like parents and mental health advocates, youth, and policymakers. We learned what was most important to them-including concerns about equitable access (e.g., providing broadband internet to families who do not have it so they can still participate) and legal risks or failures for the technology to identify suicidality. In this paper, we describe our process for not only recruiting and engaging stakeholders but also for planning action based on their feedback. Similar processes could be used by other researchers and clinical organizations seeking to incorporate technology into mental health interventions.

摘要

背景

随着青少年抑郁症和自杀倾向的增加,基于技术的干预措施可能有助于满足心理健康需求。抑郁症及紧急自杀倾向强化治疗与利用(ETUDES)中心支持开发技术干预措施,以帮助初级保健提供者解决这些问题。为了成功开发此类干预措施并将其整合到初级保健中,利益相关者的反复参与是必要的。本文概述了我们的利益相关者参与过程、对反馈和结果的定性分析,以及如何将反馈纳入中心干预措施的开发。

方法

利益相关者小组代表了ETUDES中心干预措施的关键最终用户(青少年、年轻人、父母和医疗保健提供者)及其在组织/政策层面的倡导者。在干预措施开发过程中以及年度务虚会上都举行了会议。利益相关者参与团队实时收集并总结详细的会议记录,之后生成行动项目并由整个研究团队进行审查。采用内容分析方法,使用按重复主题组织的预先指定的编码手册对所有利益相关者反馈摘要进行编码。代码按照实施研究综合框架(CFIR)进行组织。匿名的利益相关者反馈调查评估了主题的相关性、会议有效性和利益相关者的参与度。

结果

利益相关者会议就代表性、语言、获得护理的机会和耻辱感等主题提供了反馈。相关反馈和建议被纳入干预措施及其实施的后续迭代中。利益相关者对会议议程的平均评分在0 - 3李克特量表上,参与度为1.70(标准差 = 0.10),解决会议议程的有效性为2.43(标准差 = 0.08)。

结论

迭代参与方法从利益相关者那里获得了关于ETUDES中心干预措施的实际反馈。该团队整理反馈以识别使用中心干预措施的障碍和促进因素,并生成行动项目,这些行动项目被转化为实施策略的组成部分,并由CFIR - ERIC实施策略匹配工具进行补充。利益相关者的反馈将指导综合干预措施的未来发展,并指导利益相关者进一步参与开发青少年心理健康技术。在过去几年中,青少年的抑郁症和自杀率一直在上升。初级保健可能是解决这些问题的理想场所,因为大多数青少年都有初级保健提供者(PCP),他们可以为青少年及其照顾者提供一个保密的场所。我们的中心开发基于技术的干预措施,以帮助初级保健提供者解决青少年抑郁症和自杀倾向问题。多种障碍可能会阻碍初级保健提供者解决青少年抑郁症和自杀倾向问题。本文描述了我们如何让多种类型的利益相关者——即对青少年心理健康感兴趣的个人——在一系列会议中提供反馈,以帮助我们使干预措施更适合这一人群。利益相关者包括提供者、父母和心理健康倡导者等社区成员、青少年和政策制定者。我们了解到对他们来说最重要的事情——包括对公平获取的担忧(例如,为没有宽带互联网的家庭提供宽带,以便他们仍然能够参与)以及技术识别自杀倾向的法律风险或失误。在本文中,我们描述了我们不仅招募和吸引利益相关者,而且根据他们的反馈规划行动的过程。其他寻求将技术纳入心理健康干预措施的研究人员和临床组织也可以使用类似的过程。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b35c/9924270/811d59c9c6fe/10.1177_26334895221120796-fig1.jpg

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