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招募和吸引家庭参与儿童肥胖症治疗研究试验的资产和挑战:学术合作伙伴、社区合作伙伴和研究参与者的见解。

Assets and Challenges to Recruiting and Engaging Families in a Childhood Obesity Treatment Research Trial: Insights From Academic Partners, Community Partners, and Study Participants.

机构信息

Public Health Sciences, School of Medicine, University of Virginia, Charlottesville, VA, United States.

College of Public Health, University of Nebraska Medical Center, Omaha, NE, United States.

出版信息

Front Public Health. 2021 Feb 22;9:631749. doi: 10.3389/fpubh.2021.631749. eCollection 2021.

Abstract

There is need for the childhood obesity treatment literature to identify effective recruitment and engagement strategies for rural communities that are more likely to lack supportive infrastructure for healthy lifestyles and clinical research relative to their urban counterparts. This community case study examines recruitment and engagement strategies from a comparative effectiveness research (CER) trial of two family-based childhood obesity (FBCO) treatment interventions conducted in a medically underserved, rural region. Guided by a Community Based Participatory Research (CBPR) and systems-based approach, the primary aim was to analyze interviews from academic partners, community partners, and parent study participants for recruitment and engagement assets, challenges, and lessons learned. Over the 3-year lifespan of the study, researchers conducted 288 interviews with Community Advisory Board members ( = 14), Parent Advisory Team members ( = 7), and study participants ( = 100). Using an inductive-deductive approach, interviews were broadly coded for recruitment and engagement assets, challenges, and recommendations; analyzed for descriptive sub-coding; and organized into stakeholder/organization and participant level themes. Codes were analyzed aggregately across time and examined for differences among stakeholders and parent study participants. Adherence to CBPR principles and development of strong community partnerships facilitated recruitment and engagement; however, variability in recruitment and engagement success impacted partner confidence, threatened outcome validity, and required additional resources. Specifically, assets and challenges emerged around eight key needs. Three were at the stakeholder/organization level: (1) readiness of stakeholders to conduct CBPR research, (2) development of sustainable referral protocols, and (3) development of participant engagement systems. The remaining five were at the participant level: (1) comfort and trust with research, (2) awareness and understanding of the study, (3) intervention accessibility, (4) intervention acceptability, and (5) target population readiness. Future recommendations included conducting readiness assessments and awareness campaigns, piloting and evaluating recruitment and engagement strategies, identifying participant barriers to engagement and finding a priori solutions, and fostering stakeholder leadership to develop sustainable protocols. Collective findings from multiple perspectives demonstrate the need for multi-leveled approaches focusing on infrastructure supports and strategies to improve stakeholder and participant awareness of, and capacity for, recruiting and engaging medically underserved, rural families in a FBCO CER trial.

摘要

需要为儿童肥胖治疗文献确定有效的农村社区招募和参与策略,因为与城市相比,农村社区更缺乏支持健康生活方式和临床研究的基础设施。本社区案例研究从一项在医疗服务不足的农村地区进行的两项基于家庭的儿童肥胖(FBCO)治疗干预的比较效果研究(CER)试验中,探讨了招募和参与策略。该研究以社区参与式研究(CBPR)和基于系统的方法为指导,主要目的是分析学术合作伙伴、社区合作伙伴和家长研究参与者的访谈,以确定招募和参与的资产、挑战和经验教训。在研究的 3 年期间,研究人员对社区咨询委员会成员(n=14)、家长咨询小组(n=7)和研究参与者(n=100)进行了 288 次访谈。使用归纳演绎方法,对访谈进行了广泛的招募和参与资产、挑战和建议编码;进行描述性次编码分析;并按照利益相关者/组织和参与者层面的主题进行组织。对代码进行了时间上的汇总分析,并检查了利益相关者和家长研究参与者之间的差异。坚持 CBPR 原则和建立强大的社区伙伴关系促进了招募和参与;然而,招募和参与成功的差异影响了合作伙伴的信心,威胁了结果的有效性,并需要额外的资源。具体而言,资产和挑战出现在八个关键需求中。三个在利益相关者/组织层面:(1)利益相关者开展 CBPR 研究的准备情况,(2)可持续转诊协议的制定,以及(3)参与者参与系统的制定。其余五个在参与者层面:(1)对研究的舒适度和信任度,(2)对研究的认识和理解,(3)干预的可及性,(4)干预的可接受性,以及(5)目标人群的准备情况。未来的建议包括进行准备情况评估和宣传活动,试点和评估招募和参与策略,确定参与者参与的障碍并找到事先的解决方案,以及培养利益相关者的领导能力以制定可持续的协议。从多个角度得出的综合结论表明,需要采取多层次的方法,重点关注基础设施支持和策略,以提高医疗服务不足的农村家庭对招募和参与基于家庭的儿童肥胖比较效果研究的认识和能力。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f22c/7937718/5c118f44768a/fpubh-09-631749-g0001.jpg

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