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数字化特应性皮炎教育干预对西班牙裔患者及其家庭成员的影响。

Impact of a Digital Atopic Dermatitis Educational Intervention on Hispanic Patients and Family Members.

作者信息

Andrade Luis Fernando, Bekhash MaryJo, Choragudi Siri, Gonzalez Juan M, Valdes Rodrigo, Yosipovitch Gil

机构信息

Dr. Phillip Frost Department of Dermatology and Cutaneous Surgery, University of Miami Miller School of Medicine, Miami, FL 33136, USA.

School of Nursing and Health, University of Miami, Coral Gables, FL 33146, USA.

出版信息

J Clin Med. 2023 Mar 8;12(6):2130. doi: 10.3390/jcm12062130.

Abstract

With the increasing incidence of atopic dermatitis (AD) in the U.S., the highest prevalence of AD being found in Hispanic countries, and the rising Hispanic-American population, educational resources on eczema focused on Spanish-speaking populations are needed more than ever. As such, the primary goal of this project was to assess the beneficial impact of an educational intervention conducted through a virtual platform for Hispanic individuals living with atopic dermatitis. Utilizing WhatsApp, the study enrolled 55 participants diagnosed with AD and/or parents of children diagnosed with AD. Participants were enrolled in a seven-day educational module with daily topics on AD health knowledge. A health knowledge survey was administered before the educational program, upon completion of the program, and one month after completion. The program found a 14% increase in AD health knowledge upon completion of the program ( < 0.001). Most importantly, there was no significant difference found between the health knowledge survey submitted at program completion and one month after completion, signaling that health knowledge taught through the course was successfully retained by participants ( = 0.29). Qualitative themes involving atopic disease were additionally explored through group discussions, including mental health and peer stigma. This study is the first of its kind in dermatology utilizing the WhatsApp format. The success of retained health knowledge regarding AD demonstrates that future virtual endeavors can be effective and accessible methods of patient education overall for populations that might not have ease of access to major medical centers.

摘要

随着美国特应性皮炎(AD)发病率的上升,AD在西班牙裔国家的患病率最高,以及西班牙裔美国人人口的增加,针对说西班牙语人群的湿疹教育资源比以往任何时候都更加需要。因此,本项目的主要目标是评估通过虚拟平台对患有特应性皮炎的西班牙裔个体进行教育干预的有益影响。该研究利用WhatsApp招募了55名被诊断患有AD的参与者和/或被诊断患有AD的儿童的父母。参与者参加了一个为期七天的教育模块,每天都有关于AD健康知识的主题。在教育项目开始前、项目结束时以及结束后一个月进行了健康知识调查。该项目发现,项目完成后,AD健康知识增加了14%(<0.001)。最重要的是,在项目结束时提交的健康知识调查与结束后一个月提交的调查之间没有发现显著差异,这表明参与者成功地保留了通过课程学到的健康知识(P = 0.29)。此外,还通过小组讨论探讨了涉及特应性疾病的定性主题,包括心理健康和同伴耻辱感。这项研究是皮肤科领域首次采用WhatsApp形式进行的此类研究。关于AD的健康知识得以保留,这一成功表明,对于那些可能难以进入大型医疗中心的人群来说,未来的虚拟教育努力总体上可以成为有效的、易于获得的患者教育方法。

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