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极低出生体重儿父母的生活质量。

Quality of Life of Parents of Very Low Birth Weight Babies Admitted to the Neonatal Intensive Care Unit.

机构信息

Department of Neonatology, Fernandez Hospital, Hyderabad, Telangana.

出版信息

Indian Pediatr. 2023 Apr 15;60(4):317-319. doi: 10.1007/s13312-023-2866-1.

DOI:10.1007/s13312-023-2866-1
PMID:37002846
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10111072/
Abstract

This prospective cohort study was conducted at our tertiary care center from October, 2021 to April, 2022 to compare the parents' health-related quality of life (HRQoL) scores during neonatal intensive care unit (NICU) stay and at 3 months follow-up. Pediatric quality of life inventory (PedsQL) family impact module questionnaires were used in 46 mothers and 39 fathers during NICU stay, and 42 mothers and 38 fathers at 3-month follow-up. Greater proportions of mothers were severely affected and had higher stress levels as compared to fathers both during NICU stay (67.3% vs 48.7%) and at 3 months follow-up (62.7% vs 52.6%). Among the mothers, there was a significant improvement in individual and family functioning median (IQR) HRQL scores at 3-month follow-up [62 (48-83) vs 71(63-79)]. However, the pro-portion of mothers severely affected remained the same at NICU stay and 3-month follow-up (67.3% vs 62.7%).

摘要

本前瞻性队列研究于 2021 年 10 月至 2022 年 4 月在我们的三级护理中心进行,旨在比较新生儿重症监护病房(NICU)住院期间和 3 个月随访时父母的健康相关生活质量(HRQoL)评分。在 NICU 住院期间和 3 个月随访时,使用儿科生活质量量表(PedsQL)家庭影响模块问卷对 46 名母亲和 39 名父亲进行了调查。与父亲相比,母亲在 NICU 住院期间(67.3%比 48.7%)和 3 个月随访时(62.7%比 52.6%)受到严重影响和压力水平更高的比例更大。在母亲中,3 个月随访时个人和家庭功能中位(IQR)HRQL 评分显著改善[62(48-83)比 71(63-79)]。然而,NICU 住院期间和 3 个月随访时严重受影响的母亲比例仍保持不变(67.3%比 62.7%)。

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本文引用的文献

1
Stress and feelings in mothers and fathers in NICU: identifying risk factors for early interventions.新生儿重症监护室中父母的压力与情绪:确定早期干预的风险因素
Prim Health Care Res Dev. 2019 Jun 7;20:e81. doi: 10.1017/S1463423619000021.
2
A Prospective Study of Parent Health-Related Quality of Life before and after Discharge from the Neonatal Intensive Care Unit.前瞻性研究新生儿重症监护病房出院前后父母健康相关生活质量。
J Pediatr. 2019 Oct;213:38-45.e3. doi: 10.1016/j.jpeds.2019.05.067. Epub 2019 Jun 27.
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Fathers' Stress in a Neonatal Intensive Care Unit.新生儿重症监护病房中父亲的压力
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Indian Pediatr. 2005 Oct;42(10):989-97.
9
The PedsQL Family Impact Module: preliminary reliability and validity.儿童生活质量量表家庭影响模块:初步的信度和效度
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