Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), Site Witten, Witten, Germany.
Witten/Herdecke University, Faculty of Health, School of Nursing Science, Witten, Germany.
BMC Health Serv Res. 2023 Apr 12;23(1):358. doi: 10.1186/s12913-023-09155-7.
Care counseling is an important psychosocial intervention for people with care needs and their relatives and can contribute to maintaining and/or improving a patient's quality of life and reducing the burden of caregivers. This is especially the case for people with dementia and their relatives, in which the methods of care counseling need to be different than those for individuals with non-dementia related care needs. Furthermore, the counseling content needs to be adjusted to the specific form and stage of dementia. In Germany, every person who receives support per the German Social Law Book XI (SBG XI) can take advantage of care counseling according to §7a SGB XI. To date, there is no systematic overview of counseling services for people with dementia and their relatives related to this specific provision in Germany.
We conducted a gray-shaded scoping review with a focus on the evaluation of care counseling according to §7a SGB XI for people with dementia and their relatives. For this purpose, we applied five search strategies. We researched (1) national electronic databases, (2) Google, (3) targeted websites, (4) experts, and (5) academic electronic databases. Additionally, for the included gray literature, we conducted backward citation tracking via reference lists and forward citation tracking via Google Scholar for scientific articles. Screening of the identified potentially relevant records was performed independently by two reviewers.
We identified 985 records and included 6 studies in our review. We divided the identified studies into three themes: understanding conceptual dimensions, digitalization of counseling, and understanding the perspective of those being counseled. No studies investigated the perspective and experience of people with dementia and their relatives regarding the counseling service according to §7a SGB XI.
Our results show that further research is needed, especially regarding the experience of people with dementia and their relatives who participated in counseling according to §7a SGB XI. It seems essential to understand the perspective of people with dementia and their relatives to improve and tailor counseling services in Germany.
The review protocol was prospectively published (BMJ Open 12:e059771, 2022).
护理咨询是对有护理需求的患者及其家属的重要社会心理干预措施，有助于维持和/或提高患者的生活质量，并减轻护理人员的负担。对于痴呆症患者及其家属来说尤其如此，他们的护理咨询方法需要与非痴呆症相关护理需求的患者有所不同。此外，咨询内容需要根据痴呆症的具体形式和阶段进行调整。在德国，根据《德国社会法典第十一卷》（SBG XI）获得支持的每个人都可以根据§7a SBG XI 享受护理咨询。迄今为止，德国尚未针对这一特定条款对痴呆症患者及其家属的护理咨询服务进行系统概述。
我们进行了一项灰色文献范围界定综述，重点评估了根据§7a SBG XI 为痴呆症患者及其家属提供的护理咨询。为此，我们应用了五种搜索策略。我们研究了（1）国家电子数据库，（2）Google，（3）目标网站，（4）专家，以及（5）学术电子数据库。此外，对于包含的灰色文献，我们通过参考列表进行回溯引文追踪，并通过 Google Scholar 对科学文章进行前向引文追踪。两名评审员独立对确定的潜在相关记录进行了筛选。
我们确定了 985 条记录，并将 6 项研究纳入了我们的综述。我们将确定的研究分为三个主题：理解概念维度、咨询的数字化，以及理解被咨询者的视角。没有研究调查过根据§7a SBG XI 接受咨询的痴呆症患者及其家属对咨询服务的看法和经验。
我们的研究结果表明，需要进一步研究，特别是关于根据§7a SBG XI 接受咨询的痴呆症患者及其家属的经验。了解痴呆症患者及其家属的观点对于改善和调整德国的咨询服务似乎至关重要。
该综述方案已预先在（BMJ Open 12:e059771, 2022）上公布。
