Department of Obstetrics & Gynaecology, University of Melbourne, Royal Women's Hospital, Melbourne, Australia.
Centre for Epidemiology and Biostatistics, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, Australia.
J Assist Reprod Genet. 2023 Jun;40(6):1265-1280. doi: 10.1007/s10815-023-02796-x. Epub 2023 Apr 14.
Identifying the information and decision support needs of women interested in receiving planned oocyte cryopreservation (POC) information.
An online survey of Australian women, aged 18-45, interested in receiving POC information, proficient in English, with internet access. The survey covered POC information sources, information delivery preferences, POC and age-related infertility knowledge (study-specific scale), Decisional Conflict Scale (DCS), and time spent considering POC. Target sample size (n=120) was determined using a precision-based method.
Of 332 participants, 249 (75%) had considered POC, whilst 83 (25%) had not. Over half (54%) had searched for POC information. Fertility clinic websites were predominately used (70%). Most (73%) believed women should receive POC information between ages 19-30 years. Preferred information providers were fertility specialists (85%) and primary care physicians (81%). Other methods rated most useful to deliver POC information were online. Mean knowledge score was 8.9/14 (SD:2.3). For participants who had considered POC, mean DCS score was 57.1/100 (SD:27.2) and 78% had high decisional conflict (score >37.5). In regression, lower DCS scores were associated with every 1-point increase in knowledge score (-2.4; 95% CI [-3.9, -0.8]), consulting an IVF specialist (-17.5; [-28.0, -7.1]), and making a POC decision (-18.4; [-27.5, -9.3]). Median time to decision was 24-months (IQR: 12.0-36.0) (n=53).
Women interested in receiving POC information had knowledge gaps, and wanted to be informed about the option by age 30 years from healthcare professionals and online resources. Most women who considered using POC had high decisional conflict indicating a need for decision support.
确定对接受计划卵母细胞冷冻保存（POC）信息感兴趣的女性的信息和决策支持需求。
对年龄在 18-45 岁之间、精通英语且能上网的澳大利亚女性进行了一项关于 POC 信息的在线调查。该调查涵盖了 POC 信息来源、信息传递偏好、POC 和与年龄相关的不孕知识（特定于研究的量表）、决策冲突量表（DCS）以及考虑 POC 的时间。使用基于精度的方法确定了目标样本量（n=120）。
在 332 名参与者中，有 249 名（75%）考虑过 POC，而 83 名（25%）没有考虑过。超过一半（54%）的人曾搜索过 POC 信息。生育诊所网站是最常用的信息来源（70%）。大多数（73%）人认为女性应该在 19-30 岁之间获得 POC 信息。首选的信息提供者是生育专家（85%）和初级保健医生（81%）。其他被认为最有用的提供 POC 信息的方法是在线。POC 知识平均得分为 8.9/14（SD：2.3）。对于考虑过 POC 的参与者，平均 DCS 得分为 57.1/100（SD：27.2），78%的人有高度决策冲突（得分>37.5）。在回归中，DCS 评分每增加 1 分，评分就会降低 2.4 分（95%CI [-3.9, -0.8]），咨询体外受精专家（-17.5；[-28.0, -7.1]），并做出 POC 决定（-18.4；[-27.5, -9.3]）。决策中位数时间为 24 个月（IQR：12.0-36.0）（n=53）。
对接受 POC 信息感兴趣的女性知识存在差距，希望在 30 岁之前从医疗保健专业人员和在线资源中了解这一选择。大多数考虑使用 POC 的女性都有很高的决策冲突，这表明她们需要决策支持。
