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2022 Alzheimer's disease facts and figures.2022 年阿尔茨海默病事实和数据。
Alzheimers Dement. 2022 Apr;18(4):700-789. doi: 10.1002/alz.12638. Epub 2022 Mar 14.
2
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Gerontologist. 2022 May 26;62(5):685-693. doi: 10.1093/geront/gnab147.
3
Traversing the Aging Research and Health Equity Divide: Toward Intersectional Frameworks of Research Justice and Participation.跨越老龄化研究与健康公平鸿沟:走向研究正义与参与的交叉框架。
Gerontologist. 2022 May 26;62(5):711-720. doi: 10.1093/geront/gnab107.
4
Results of a Randomized Trial Testing the Efficacy of Tele-Savvy, an Online Synchronous/Asynchronous Psychoeducation Program for Family Caregivers of Persons Living with Dementia.一项随机试验的结果,该试验测试了 Tele-Savvy 的疗效,Tele-Savvy 是一个针对痴呆症患者的家庭护理人员的在线同步/异步心理教育计划。
Gerontologist. 2022 Apr 20;62(4):616-628. doi: 10.1093/geront/gnab029.
5
Changes in physical and mental health of Black, Hispanic, and White caregivers and non-caregivers associated with onset of spousal dementia.与配偶痴呆症发病相关的黑人、西班牙裔和白人护理人员及非护理人员身心健康的变化。
Alzheimers Dement (N Y). 2020 Nov 2;6(1):e12082. doi: 10.1002/trc2.12082. eCollection 2020.
6
Missing the Mark: The Complexity of African American Dementia Family Caregiving.错失目标:非裔美国人痴呆症家庭护理的复杂性。
J Fam Nurs. 2020 Nov;26(4):294-301. doi: 10.1177/1074840720945329. Epub 2020 Aug 6.
7
Race Differences in Characteristics and Experiences of Black and White Caregivers of Older Americans.美国老年黑人和白人护理者的特征和经历方面的种族差异。
Gerontologist. 2020 Sep 15;60(7):1244-1253. doi: 10.1093/geront/gnaa042.
8
Systematic Review and Meta-Analysis of Racial and Ethnic Differences in Dementia Caregivers' Well-Being.系统评价和元分析痴呆症照顾者幸福感的种族和民族差异。
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9
Factors influencing quality of life in African-American dementia dyads.影响非裔美国痴呆症患者二人组生活质量的因素。
Aging Ment Health. 2021 Apr;25(4):703-710. doi: 10.1080/13607863.2020.1711865. Epub 2020 Jan 10.
10
The Effect of the "" on Psychological Outcomes, Burden, and Mastery in African American Caregivers of Persons Living With Dementia.《“”对生活在痴呆症患者中的非裔美国照护者的心理结果、负担和掌控感的影响》。
J Appl Gerontol. 2020 Oct;39(10):1059-1068. doi: 10.1177/0733464819874574. Epub 2019 Sep 19.

非西班牙裔美国黑人和白人社工的远程护理成效。

Tele-Savvy Outcomes of Non-Hispanic Black American and White Caregivers.

机构信息

Nell Hodgson Woodruff School of Nursing, Emory University, Atlanta, Georgia, USA.

出版信息

Gerontologist. 2024 Jan 1;64(1). doi: 10.1093/geront/gnad044.

DOI:10.1093/geront/gnad044
PMID:37067896
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10733122/
Abstract

BACKGROUND AND OBJECTIVES

Tele-Savvy is a synchronous/asynchronous psychoeducation program for caregivers of community-dwelling persons living with Alzheimer's disease and related dementias (ADRD) designed to increase caregivers' competence and confidence (mastery) in caregiving. Its overall efficacy was tested in a randomized controlled trial.

RESEARCH DESIGN AND METHODS

This secondary data analysis examined the caregiver mastery and psychological health (i.e., perceived stress, depressive symptoms, and burden) outcome of 153 non-Hispanic Black American and White caregivers (31 non-Hispanic Black American and 122 White caregivers) from baseline to 6 months postintervention. Given the difference in the sample sizes of Black and White caregivers, a descriptive post hoc subgroup analysis was conducted of 21 non-Hispanic Black American and 20 White adult children and grandchildren caregivers.

RESULTS

In the overall sample, Black American caregivers demonstrated higher levels of mastery and lower levels of distress than White caregivers at baseline and across all time points. Over time, White caregivers, but not Black American caregivers, experienced significantly improved levels of mastery and significantly lowered levels of depression. Within the subgroup analysis, except for a moderate effect size in the management of situation scores over time among Black American adult children caregivers, similar results were obtained.

DISCUSSION AND IMPLICATIONS

The findings highlight the strengths and shortcomings of the Tele-Savvy program in improving caregiver mastery and reducing negative psychological health outcomes. Intentionally tailoring the Tele-Savvy program to certain racial and caregiving groups may hold promise in meeting the needs of more ADRD caregivers.

CLINICAL TRIAL REGISTRATION

NCT03033875.

摘要

背景与目的

Tele-Savvy 是一个针对居住在社区的阿尔茨海默病及相关痴呆症(ADRD)患者的照料者的同步/异步心理教育计划,旨在提高照料者在照顾方面的能力和信心(掌握)。其整体疗效已在随机对照试验中得到验证。

研究设计与方法

本二次数据分析了 153 名非西班牙裔黑人和白人照料者(31 名非西班牙裔黑人和 122 名白人照料者)从基线到干预后 6 个月的照料者掌握程度和心理健康(即感知压力、抑郁症状和负担)结果。鉴于黑人和白人照料者的样本量差异,对 21 名非西班牙裔黑人成年子女和孙辈照料者和 20 名白人成年子女和孙辈照料者进行了描述性事后亚组分析。

结果

在总体样本中,黑人群体在基线和所有时间点的掌握程度都高于白人群体,且压力水平更低。随着时间的推移,只有白人群体照料者的掌握程度显著提高,抑郁程度显著降低,而非黑人群体照料者则没有这种变化。在亚组分析中,除了黑人群体成年子女照料者在管理情况得分方面的中度效应大小随时间的变化外,还得到了类似的结果。

讨论与意义

研究结果强调了 Tele-Savvy 计划在提高照料者掌握程度和降低负面心理健康结果方面的优势和不足。有针对性地针对特定种族和照顾群体调整 Tele-Savvy 计划可能有助于满足更多 ADRD 照顾者的需求。

临床试验注册

NCT03033875。