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Examining cultural adaptations of the savvy caregiver program for Korean American caregivers using the framework for reporting adaptations and modifications-enhanced (FRAME).使用适应和修改增强报告框架(FRAME),检查明智护理员计划在韩裔美国家庭护理员中的文化适应情况。
BMC Geriatr. 2024 Jan 20;24(1):79. doi: 10.1186/s12877-024-04715-w.
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Prevalence of Alzheimer's disease dementia in the 50 US states and 3142 counties: A population estimate using the 2020 bridged-race postcensal from the National Center for Health Statistics.美国 50 个州和 3142 个县的阿尔茨海默病痴呆患病率:利用国家卫生统计中心 2020 年 bridged-race 人口普查后数据进行的人群估计。
Alzheimers Dement. 2023 Oct;19(10):4388-4395. doi: 10.1002/alz.13081. Epub 2023 Jul 17.
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The Use of Telehealth Among People Living With Dementia-Caregiver Dyads During the COVID-19 Pandemic: Scoping Review.在 COVID-19 大流行期间,痴呆症患者-照护者对使用远程医疗的情况:范围综述。
J Med Internet Res. 2023 May 25;25:e45045. doi: 10.2196/45045.
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Tele-Savvy Outcomes of Non-Hispanic Black American and White Caregivers.非西班牙裔美国黑人和白人社工的远程护理成效。
Gerontologist. 2024 Jan 1;64(1). doi: 10.1093/geront/gnad044.
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Introduction to ADRD Care in Context.ADRD护理背景介绍。
J Gerontol B Psychol Sci Soc Sci. 2023 Mar 13;78(Suppl 1):S1-S3. doi: 10.1093/geronb/gbac181.
6
Feasibility of the Savvy Caregiver Program for LGBTQ+ Caregivers of People Living with Alzheimer's Disease and Related Dementias.适用于阿尔茨海默病和相关痴呆症患者的 LGBTQ+ 照顾者的明智照顾者计划的可行性。
Int J Environ Res Public Health. 2022 Nov 16;19(22):15102. doi: 10.3390/ijerph192215102.
7
Cultural adaptation of the savvy caregiver program for Korean Americans with limited English proficiency: a feasibility and acceptability study.针对英语水平有限的韩裔美国人的明智护理者计划的文化适应性:一项可行性和可接受性研究。
BMC Geriatr. 2022 Nov 18;22(1):875. doi: 10.1186/s12877-022-03611-5.
8
Estimation of the global prevalence of dementia in 2019 and forecasted prevalence in 2050: an analysis for the Global Burden of Disease Study 2019.2019 年全球痴呆症患病率估计及 2050 年预测患病率:2019 年全球疾病负担研究分析。
Lancet Public Health. 2022 Feb;7(2):e105-e125. doi: 10.1016/S2468-2667(21)00249-8. Epub 2022 Jan 6.
9
Online Educational Tools for Caregivers of People with Dementia: A Scoping Literature Review.痴呆症患者照顾者的在线教育工具:一项范围界定文献综述
Can Geriatr J. 2021 Dec 1;24(4):351-366. doi: 10.5770/cgj.24.506. eCollection 2021 Dec.
10
Black and White individuals differ in dementia prevalence, risk factors, and symptomatic presentation.黑人和白人在痴呆症的患病率、风险因素和症状表现方面存在差异。
Alzheimers Dement. 2022 Aug;18(8):1461-1471. doi: 10.1002/alz.12509. Epub 2021 Dec 2.

痴呆症患者不同照护者对在线干预措施的看法。

Participant perspectives on online interventions for diverse caregivers of persons living with dementia.

作者信息

Barrio Concepción, Liang Jiaming, Cordero Yvette I, Aranda María P

机构信息

Suzanne Dworak-Peck School of Social Work, University of Southern California, Los Angeles, California, USA.

Department of Management, Policy & Community Health, USC Edward R. Roybal Institute on Aging, Los Angeles, California, USA.

出版信息

Alzheimers Dement. 2025 Jun;21(6):e70324. doi: 10.1002/alz.70324.

DOI:10.1002/alz.70324
PMID:40469044
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12138286/
Abstract

INTRODUCTION

The evidentiary base for dementia caregiver programs is still emerging and is less clear for diverse racial and ethnic minoritized populations. We explored in-depth perspectives about program participation, acceptability, and recommendations from diverse caregivers who completed one of three versions of the Savvy Caregiver Program.

METHODS

We conducted 19 focus groups with 92 caregivers who participated in an online version of the Savvy Caregiver Program (Savvy Caregiver Program, Savvy Express, and Unidos en el Cuidado, a Spanish-language version). Data were analyzed with thematic analysis.

RESULTS

Caregivers reported positive appraisals of the program's acceptability. Time constraints and a desire for more peer interaction were prominent. Key themes included programmatic features, cultural and gender considerations, program and research participation, and suggestions for improvement.

DISCUSSION

Our findings can inform programmatic improvements to future interventions for family caregivers of persons living with dementia, applicable to both online and on-site settings.

HIGHLIGHTS

Diverse caregivers report positive experiences in online dementia caregiving interventions. Key takeaways include dementia knowledge, self-care, and caregiving strategies. Cultural and gender considerations highlight gaps in caregiver program representation. Participants suggest expanding discussion time and offering follow-up sessions.

摘要

引言

痴呆症护理者项目的证据基础仍在形成中,对于不同种族和族裔的少数群体来说尚不够清晰。我们深入探讨了参与三个版本之一的“精明护理者项目”的不同护理者对项目参与、可接受性及建议的看法。

方法

我们与92名参与“精明护理者项目”在线版本(“精明护理者项目”、“精明快车”以及西班牙语版本“Unidos en el Cuidado”)的护理者进行了19次焦点小组访谈。采用主题分析法对数据进行分析。

结果

护理者对该项目的可接受性给予了积极评价。时间限制以及对更多同伴互动的渴望较为突出。关键主题包括项目特征、文化和性别考量、项目及研究参与情况以及改进建议。

讨论

我们的研究结果可为未来针对痴呆症患者家庭护理者的干预措施的项目改进提供参考,适用于在线和现场环境。

要点

不同护理者报告了在线痴呆症护理干预的积极体验。关键收获包括痴呆症知识、自我护理和护理策略。文化和性别考量凸显了护理者项目代表性方面的差距。参与者建议延长讨论时间并提供后续课程。