痴呆症患者不同照护者对在线干预措施的看法。
Participant perspectives on online interventions for diverse caregivers of persons living with dementia.
作者信息
Barrio Concepción, Liang Jiaming, Cordero Yvette I, Aranda María P
机构信息
Suzanne Dworak-Peck School of Social Work, University of Southern California, Los Angeles, California, USA.
Department of Management, Policy & Community Health, USC Edward R. Roybal Institute on Aging, Los Angeles, California, USA.
出版信息
Alzheimers Dement. 2025 Jun;21(6):e70324. doi: 10.1002/alz.70324.
INTRODUCTION
The evidentiary base for dementia caregiver programs is still emerging and is less clear for diverse racial and ethnic minoritized populations. We explored in-depth perspectives about program participation, acceptability, and recommendations from diverse caregivers who completed one of three versions of the Savvy Caregiver Program.
METHODS
We conducted 19 focus groups with 92 caregivers who participated in an online version of the Savvy Caregiver Program (Savvy Caregiver Program, Savvy Express, and Unidos en el Cuidado, a Spanish-language version). Data were analyzed with thematic analysis.
RESULTS
Caregivers reported positive appraisals of the program's acceptability. Time constraints and a desire for more peer interaction were prominent. Key themes included programmatic features, cultural and gender considerations, program and research participation, and suggestions for improvement.
DISCUSSION
Our findings can inform programmatic improvements to future interventions for family caregivers of persons living with dementia, applicable to both online and on-site settings.
HIGHLIGHTS
Diverse caregivers report positive experiences in online dementia caregiving interventions. Key takeaways include dementia knowledge, self-care, and caregiving strategies. Cultural and gender considerations highlight gaps in caregiver program representation. Participants suggest expanding discussion time and offering follow-up sessions.
引言
痴呆症护理者项目的证据基础仍在形成中，对于不同种族和族裔的少数群体来说尚不够清晰。我们深入探讨了参与三个版本之一的“精明护理者项目”的不同护理者对项目参与、可接受性及建议的看法。
方法
我们与92名参与“精明护理者项目”在线版本（“精明护理者项目”、“精明快车”以及西班牙语版本“Unidos en el Cuidado”）的护理者进行了19次焦点小组访谈。采用主题分析法对数据进行分析。
结果
护理者对该项目的可接受性给予了积极评价。时间限制以及对更多同伴互动的渴望较为突出。关键主题包括项目特征、文化和性别考量、项目及研究参与情况以及改进建议。
讨论
我们的研究结果可为未来针对痴呆症患者家庭护理者的干预措施的项目改进提供参考，适用于在线和现场环境。
要点
不同护理者报告了在线痴呆症护理干预的积极体验。关键收获包括痴呆症知识、自我护理和护理策略。文化和性别考量凸显了护理者项目代表性方面的差距。参与者建议延长讨论时间并提供后续课程。
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