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根据照顾者的年龄和照顾脊髓损伤个体的活动类型,评估照顾者的负担。

Caregiver burden according to ageing and type of care activity in caregivers of individuals with spinal cord injury.

机构信息

Department of Nursing, National Rehabilitation Center, Seoul, South Korea.

Department of Rehabilitation Medicine, National Rehabilitation Center, Seoul, South Korea.

出版信息

Spinal Cord Ser Cases. 2023 Apr 18;9(1):16. doi: 10.1038/s41394-023-00570-w.

Abstract

OBJECTIVE

To describe caregiver burden according to the caregivers' general characteristics, especially with ageing, and type of care activities provided by caregivers of individuals with spinal cord injury.

DESIGN

A cross-sectional study was conducted utilizing a structured questionnaire that included general characteristics, health conditions, and caregiver burden.

SETTING

A single center study in Seoul, Korea.

SUBJECTS

Participants were recruited from 87 individuals with spinal cord injuries and 87 caregivers.

METHODS

The Caregiver Burden Inventory was used to assess caregiver burden.

RESULTS

Caregiver burden was significantly different by age (p = 0.001), relationship (p = 0.025), sleep hours (p = <0.001), underlying disease (p = 0.018), pain (p = <0.001), and daily activities of individuals with spinal cord injury (p = 0.001). Caregiver's age (B = 0.339, p = 0.049), sleep duration (B = -2.896, p = 0.012) and pain (B = 2.558, p < 0.001) predicted caregiver burden. Toileting assistance was the most challenging and time-consuming for caregivers, while patient transfer was associated with the greatest concerns for body injury.

CONCLUSION

Caregiver education should be targeted according to caregiver's age and type of assistance. Social policies need to be developed to distribute devices and care-robots to reduce caregiver burden and thereby assist caregivers.

摘要

目的

根据照顾者的一般特征,尤其是年龄和照顾者提供的照顾活动类型,描述照顾者负担。

设计

横断面研究采用结构问卷进行,问卷包括一般特征、健康状况和照顾者负担。

地点

韩国首尔的一个单一中心。

受试者

从 87 名脊髓损伤患者和 87 名照顾者中招募参与者。

方法

使用照顾者负担量表评估照顾者负担。

结果

照顾者负担在年龄(p=0.001)、关系(p=0.025)、睡眠时间(p<0.001)、潜在疾病(p=0.018)、疼痛(p<0.001)和脊髓损伤患者的日常活动(p=0.001)方面存在显著差异。照顾者的年龄(B=0.339,p=0.049)、睡眠时间(B=-2.896,p=0.012)和疼痛(B=2.558,p<0.001)预测了照顾者负担。协助患者如厕是照顾者最具挑战性和最耗时的任务,而患者转移则与身体损伤的最大顾虑相关。

结论

应根据照顾者的年龄和提供的照顾类型,为照顾者提供教育。需要制定社会政策,分发设备和护理机器人,以减轻照顾者的负担,从而为照顾者提供帮助。

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