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患有脊髓脊膜膨出症儿童家庭的压力

Stress in families of children with myelomeningocele.

作者信息

Kazak A E, Clark M W

出版信息

Dev Med Child Neurol. 1986 Apr;28(2):220-8. doi: 10.1111/j.1469-8749.1986.tb03858.x.

Abstract

Three aspects of stress were investigated in 56 families with a child with myelomeningocele and in 53 matched comparison families. Children with myelomeningocele were found to have lower self-concepts than the comparison children, but this did not apply to the siblings in the two groups. Severity of handicap was related to marital satisfaction, in that parents of more severely handicapped children had higher levels of marital satisfaction than parents of less severely involved children. The findings imply that ways should be found of improving the self-concepts of children with myelomeningocele, and of examining interrelationships between the child's self-concept and patterns of family interaction.

摘要

对56个有脊髓脊膜膨出患儿的家庭和53个匹配的对照家庭的压力的三个方面进行了调查。发现脊髓脊膜膨出患儿的自我概念比对照儿童低,但这不适用于两组中的兄弟姐妹。残疾严重程度与婚姻满意度相关,即残疾较严重儿童的父母比残疾较轻儿童的父母有更高的婚姻满意度。研究结果表明,应该找到方法来改善脊髓脊膜膨出患儿的自我概念,并研究儿童自我概念与家庭互动模式之间的相互关系。

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