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年轻女性经历造口术后生活的定性研究。

A Qualitative Study on How Younger Women Experience Living with an Ostomy.

机构信息

Department of Nursing and Health Promotion, Faculty of Health Sciences, OsloMet, Oslo Metropolitan University, 0130 Oslo, Norway.

出版信息

Int J Environ Res Public Health. 2023 Apr 24;20(9):5627. doi: 10.3390/ijerph20095627.

DOI:10.3390/ijerph20095627
PMID:37174147
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10178502/
Abstract

There is a growing demand that ostomy patients receive more systematic and individualised follow-up by ostomy nurses. The purpose of the study was to explore how younger women experience everyday life after an ostomy and to map what healthcare personnel can do to ensure that the patient group can feel safe and looked after. This qualitative study included four younger women who had a stoma fitted. Individual in-depth interviews were conducted, and two participants were interviewed twice. The findings resulted in three main themes: (1) The importance of follow-up and information from healthcare personnel, (2) Experience with illness and freedom in everyday life and (3) Self-image and social relationships. We found that time to prepare before surgery and learning to live with the stoma provide a good basis for handling the new everyday life with a stoma. We conclude that ostomy nurses provide support and security to those undergoing ostomy operations. Healthcare professionals should focus on providing individually tailored information to ensure that patients are receptive to the information being shared with them. Having parts of a bowel removed can be experienced as relief, especially when the disease has previously contributed to poor self-image and social isolation.

摘要

越来越多的造口患者需要接受造口护士提供的更系统和个体化的随访。本研究旨在探讨年轻女性在造口后的日常生活体验,并探讨医护人员可以采取哪些措施确保患者群体感到安全和得到照顾。这项定性研究包括 4 名接受造口术的年轻女性。进行了个体深入访谈,其中 2 名参与者接受了两次访谈。研究结果得出了三个主要主题:(1)医护人员随访和信息的重要性,(2)疾病体验和日常生活的自由,(3)自我形象和社会关系。我们发现,手术前的准备时间和学习与造口共存为处理带有造口的新生活提供了良好的基础。我们的结论是,造口护士为接受造口手术的患者提供支持和保障。医护人员应注重提供个性化的信息,确保患者愿意接受与他们分享的信息。切除部分肠道可能会被视为一种解脱,尤其是当疾病以前导致自我形象不佳和社交孤立时。

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Am I safe? An Interpretative Phenomenological Analysis of Vulnerability as Experienced by Patients With Complications Following Surgery.我安全吗?手术并发症患者脆弱性体验的阐释现象学分析。
Qual Health Res. 2022 Dec;32(14):2078-2089. doi: 10.1177/10497323221136956. Epub 2022 Nov 2.
2
Ostomy-related problems and their impact on quality of life of Saudi ostomate patients: A mixed-methods study.造口相关问题及其对沙特造口患者生活质量的影响:混合方法研究。
J Clin Nurs. 2023 Jul;32(13-14):3707-3719. doi: 10.1111/jocn.16466. Epub 2022 Aug 24.
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Efficacy of a Social Interaction Intervention in Early Postoperative Period to Improve Coping in Persons With an Ostomy: A Randomized Controlled Trial.社交互动干预对改善造口术后早期应对能力的疗效:一项随机对照试验。
J Wound Ostomy Continence Nurs. 2022;49(4):352-357. doi: 10.1097/WON.0000000000000886.
4
Challenges faced by people with a stoma: peristomal body profile risk factors and leakage.造口人面临的挑战:造口周围身体轮廓的风险因素和渗漏。
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"Living with a Stoma": Exploring the Lived Experience of Patients with Permanent Colostomy.《带着造口生活》:探索永久性结肠造口患者的生活体验。
Int J Environ Res Public Health. 2021 Aug 12;18(16):8512. doi: 10.3390/ijerph18168512.
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Effects of comprehensive care on psychological emotions, postoperative rehabilitation and complications of colorectal cancer patients after colostomy.综合护理对结直肠癌患者结肠造口术后心理情绪、术后康复及并发症的影响。
Am J Transl Res. 2021 Jun 15;13(6):6889-6896. eCollection 2021.
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Quality of life among ostomy patients: A narrative literature review.肠造口患者的生活质量:叙事文献综述。
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Embracing a 'new normal': the construction of biographical renewal in young adults' narratives of living with a stoma.拥抱“新常态”:年轻成年人讲述与造口生活相关的传记更新。
Sociol Health Illn. 2020 Feb;42(2):342-358. doi: 10.1111/1467-9566.13005. Epub 2019 Sep 27.
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Relationship between psychosocial adaptation and health-related quality of life of patients with stoma: A descriptive, cross-sectional study.肠造口患者心理社会适应与健康相关生活质量的关系:一项描述性、横断面研究。
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