Essex Ryan, Booth Lesley, Sirois Fuschia, Burch Jennie, Dibley Lesley
Centre for Chronic Illness and Ageing, Institute for Lifecourse Development, Faculty of Education, Health and Humans Sciences, University of Greenwich, London, UK.
Cambridge Rare Disease Network, Cambridge, UK.
J Adv Nurs. 2025 Jan;81(1):53-68. doi: 10.1111/jan.16254. Epub 2024 May 23.
Surgical treatment for inflammatory bowel disease (IBD) potentially includes stoma formation. Although positive clinical outcomes are widely reported, patients' responses to stoma surgery, including coming to terms with and adjusting to the stoma, vary widely. This scoping review charts the qualitative literature addressing the question: What is known about any personal psychosocial and quality of life factors that inform adjustment to living well with an intestinal stoma for IBD?
A scoping review methodology was employed.
Searches of Scopus, Web of Science, CINAHL, Medline and PsycInfo in August 2023.
Levac et al.'s (2010) methodology was followed. PRISMA-ScR guidelines were adhered to.
Thirteen cross-sectional studies were included, involving a total of 142 participants. Four themes were identified: (1) facilitative factors; (2) barriers to adjustment; (3) personal attributes; and (4) time and temporality. Data indicate that personal and psychological factors influence adjustment, but not how this occurs. Adjustment takes longer to achieve than is conventionally (clinically) expected.
All available evidence is cross-sectional. The identified gap in the evidence is the notable lack of longitudinal research to assess, monitor and understand the complex process of adjustment in people with IBD having stoma-forming surgery. Detailed understanding of the process of adjustment would enable more targeted support for patients preparing for, and learning to live with, a stoma for IBD.
This paper highlights the need to understand the multiple personal and psychosocial factors that affect adjustment to life with a stoma and identifies that adjustment takes significantly longer than the few weeks required to become competent in managing the stoma.
Not applicable.
炎症性肠病（IBD）的外科治疗可能包括造口术。尽管广泛报道了积极的临床结果，但患者对造口手术的反应，包括接受和适应造口，差异很大。本范围综述梳理了定性文献，以回答以下问题：关于哪些个人心理社会因素和生活质量因素有助于IBD患者适应肠道造口并过上良好生活，我们了解多少？
采用范围综述方法。
2023年8月检索Scopus、科学网、护理学与健康领域数据库（CINAHL）、医学期刊数据库（Medline）和心理学文摘数据库（PsycInfo）。
遵循莱瓦克等人（2010年）的方法。遵守系统综述与Meta分析扩展版范围综述（PRISMA-ScR）指南。
纳入了13项横断面研究，共涉及142名参与者。确定了四个主题：（1）促进因素；（2）适应障碍；（3）个人特质；（4）时间与时效性。数据表明，个人和心理因素会影响适应过程，但未表明其影响方式。适应过程所需时间比传统（临床）预期的要长。
所有现有证据均为横断面研究。证据中存在的明显差距是，缺乏纵向研究来评估、监测和理解IBD患者接受造口手术的复杂适应过程。对适应过程的详细了解将有助于为准备接受并学会与IBD造口共同生活的患者提供更有针对性的支持。
本文强调了了解影响造口生活适应的多种个人和心理社会因素的必要性，并指出适应过程所需时间明显长于熟练管理造口所需的几周时间。
不适用。
