Department of Community and Behavioral Health, College of Public Health, East Tennessee State University, Johnson City, TN 37614, USA.
Department of Health Services Management and Policy, College of Public Health, East Tennessee State University, Johnson City, TN 37614, USA.
Int J Environ Res Public Health. 2023 Apr 27;20(9):5660. doi: 10.3390/ijerph20095660.
The disproportionate burden of cardiovascular diseases (CVD) and associated risk factors continues to exist in the Central Appalachian Region (CAR) of the United States. Previous studies to gather data about patient-centered care for CVD in the region were conducted through focus group discussions. There have not been any studies that used a collaborative framework where patients, providers, and community stakeholders were engaged as panelists. The objective of this study was to identify patient-centered research priorities for CVD in the CAR. We used a modified Delphi approach to administer questionnaires to forty-two stakeholder experts in six states representing the CAR between the fall of 2018 and the summer of 2019. Their responses were analyzed for rankings and derived priorities by research gaps. Six of the fifteen research priorities identified were patient-centered. These patient-centered priorities included shorter wait times for appointments; educating patients at their level; empowering patients to take responsibility for their health; access to quality providers; heart disease specialists for rural areas; and lifestyle changes. The participants' commitments to identify patient-centered research priorities indicate the potential to engage in community-based collaboration to address the burden of CVD in the CAR.
美国中阿巴拉契亚地区（CAR）的心血管疾病（CVD）及其相关风险因素的负担仍然不成比例。以前为收集该地区以患者为中心的 CVD 护理数据而进行的研究是通过焦点小组讨论进行的。还没有任何研究使用过患者、提供者和社区利益相关者作为小组成员的协作框架。本研究的目的是确定 CAR 中 CVD 的以患者为中心的研究重点。我们在 2018 年秋季至 2019 年夏季期间，使用改良 Delphi 方法向来自六个州的代表 CAR 的 42 名利益相关者专家发放问卷。通过研究差距对他们的回答进行排名和优先排序分析。确定的十五项研究重点中有六项是以人为中心的。这些以人为中心的重点包括缩短预约等待时间；根据患者的水平进行教育；使患者能够为自己的健康负责；获得优质的提供者；为农村地区提供心脏病专家；以及生活方式的改变。参与者承诺确定以人为中心的研究重点，这表明有可能开展基于社区的合作，以解决 CAR 中 CVD 的负担。
