Thomas Nicky, Atherton Helen, Dale Jeremy, Smith Kayla, Crawford Hayley
Division of Health Sciences, Warwick Medical School, University of Warwick, Coventry, UK
Division of Health Sciences, Warwick Medical School, University of Warwick, Coventry, UK.
BJGP Open. 2023 Sep 19;7(3). doi: 10.3399/BJGPO.2023.0010. Print 2023 Sep.
Parents of children diagnosed with intellectual disability are at increased risk of mental and physical health difficulties compared with other parents. They are likely to regularly seek medical treatment for their health concerns from general practice as well as on behalf of their child with intellectual disability, yet there is limited evaluation of the role general practice plays for this patient group.
To explore parents' experiences of general practice support when caring for a child with intellectual disability.
DESIGN & SETTING: Systematic review of studies reporting experiences of general practice as described by parents who care for children with intellectual disability.
Databases were searched using a pre-defined search strategy. Studies were included based on detailed inclusion criteria, title, abstract, and full-text screening. Quality assessment was conducted using the Mixed Methods Appraisal Tool (MMAT). A narrative synthesis was conducted.
A total of nine studies were identified. There was a clear absence of data on parents' own health experience and consultation in general practice. Findings related to navigating general practice on behalf of their child's health including accessibility of general practice and positive and negative experiences of GPs.
Findings from this review highlight priority areas for research, including further exploration of parents' perspectives on seeking support specifically for their own health concerns, while caring for a child with intellectual disability, to bring more awareness and understanding of the role general practice plays in supporting the health of this carer group. This review also considers implications for clinical services, including tailoring appointments for this patient group as a priority for continuity of care, which may result in improved experiences of general practice and encourage better communication.
与其他父母相比，被诊断为智力残疾儿童的父母出现身心健康问题的风险更高。他们可能会因自身健康问题以及代表智力残疾的孩子定期寻求全科医疗服务，但对于全科医疗服务在该患者群体中所起的作用评估有限。
探讨父母在照顾智力残疾儿童时对全科医疗服务支持的体验。
对报告照顾智力残疾儿童的父母所描述的全科医疗服务体验的研究进行系统综述。
使用预定义的搜索策略检索数据库。根据详细的纳入标准、标题、摘要和全文筛选纳入研究。使用混合方法评估工具（MMAT）进行质量评估。进行叙述性综合分析。
共识别出9项研究。明显缺乏关于父母自身健康体验和全科医疗服务咨询的数据。研究结果涉及代表孩子的健康应对全科医疗服务，包括全科医疗服务的可及性以及全科医生的正面和负面体验。
本综述的结果突出了研究的优先领域，包括进一步探索父母在照顾智力残疾儿童时就自身健康问题寻求支持的观点，以提高对全科医疗服务在支持该照顾者群体健康方面所起作用的认识和理解。本综述还考虑了对临床服务的影响，包括将为该患者群体量身定制预约作为连续护理的优先事项，这可能会改善全科医疗服务体验并促进更好的沟通。
