Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder.

CONTEXT

Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible.

AIMS

It was aimed to evaluate the effect of the variables related to both parents and children on the QoL scores of the parents of the children with ASD.

SETTINGS AND DESIGN

This is a causality analysis study.

SUBJECTS AND METHODS

Questionnaire on sociodemographic/disease-related variables, QoL in Autism Questionnaire-Parent Version (QoLA-P), autism behavior checklist and Clinical Global Impression scale were assessed of 162 patients with ASD.

STATISTICAL ANALYSIS USED

Unpaired t- test, Mann-Whitney U test, Kruskal-Wallis test, and one-way ANOVA test were used for comparing groups. The parameters found to be statistically significant for QoLA-P in different analyses were included as the independent variable in the logistic regression analysis. The backward (variable elimination) model was selected as the model in the analysis.

RESULTS

The causality has been established may be stated as the severity of autism, the presence of psychiatric disorder in the mother/father, attendance of the child at school, duration since the diagnosis of autism, and the child's medication use.

CONCLUSIONS

Autism affects the QoL of caregivers. The intervention of treatment by considering the factors that affect the QoL positively or negatively may increase the QoL of caregivers.