Aspasia Spyridaki, Emmanuela-Kalliopi Kotsoni, Nikolaos Thalassinos, Eirini Sfakianaki, Ioannis Sfendourakis, Anastasia Markaki
Department of Nutrition and Dietetics Sciences, Hellenic Mediterranean University (HMU), Trypitos area, 723 00 Sitia, Greece.
PEC Innov. 2022 Mar 31;1:100037. doi: 10.1016/j.pecinn.2022.100037. eCollection 2022 Dec.
The only available treatment for coeliac disease (CD) is a lifelong strict gluten-free diet (GFD), which can be extremely challenging. Τhe aim of the present study was to gain an insight into patients' perceptions regarding the GFD, in relation to difficulties experienced, disease-specific symptoms, adherence level, and information sources used.
Two hundred ninety CD patients (247 women and 43 men) aged 18-74 years, completed a self-administered questionnaire.
Self-rated dietary adherence was high in 65.5%, moderate in 27.5% and poor in 6.9% of the patients The main difficulties encountered were the high cost and limited availability of GF foods and meals in markets and restaurants. The main source of information concerning CD and GFD was the internet, and the most useful source was the Coeliac Society. Dietary adherence correlated positively with Coeliac Society membership and awareness of the monthly CD allowance.
Α substantial proportion of patients did not adhere to a strict GFD. Patients were not adequately followed-up.
A self-administered questionnaire was used to explore the practical challenges of a GFD in an understudied population, Greek adult coeliac patients. The results highlighted the need for dietitians with expertise on CD.
乳糜泻（CD）唯一可用的治疗方法是终身严格遵循无麸质饮食（GFD），这极具挑战性。本研究的目的是深入了解患者对GFD的看法，包括所经历的困难、疾病特异性症状、依从水平以及所使用的信息来源。
290名年龄在18 - 74岁的CD患者（247名女性和43名男性）完成了一份自我管理的问卷。
65.5%的患者自我评定饮食依从性高，27.5%的患者为中等，6.9%的患者较差。遇到的主要困难是市场和餐馆中无麸质食品和餐食的成本高且供应有限。关于CD和GFD的主要信息来源是互联网，最有用的来源是乳糜泻协会。饮食依从性与乳糜泻协会会员身份以及对每月CD津贴的知晓度呈正相关。
相当一部分患者未严格遵循GFD。患者未得到充分的随访。
使用一份自我管理的问卷来探究GFD在一个研究较少的人群——希腊成年乳糜泻患者中的实际挑战。结果凸显了对具备CD专业知识的营养师的需求。
