Research Center in Psychology (CIPsi), School of Psychology, University of Minho.
J Fam Psychol. 2024 Feb;38(1):149-160. doi: 10.1037/fam0001113. Epub 2023 Jun 8.
The present study is a systematic review of factors and consequences of parental distress following their children's acute lymphoblastic leukemia (ALL) diagnosis. PubMed, Web of Science, and APA PsycInfo databases were searched. Twenty-eight papers were included, with only three longitudinal studies. Fifteen studies explored factors of parental distress, including sociodemographic, psychosocial, psychological, family, health, and ALL-specific variables. Correlations were found between social support, illness cognitions, coping strategies, and parental distress, as well as contradictory results regarding sociodemographic variables. Family cohesion and the overall impact of illness were associated with parental distress. Resilience factors contributed negatively to parental distress symptoms, and perceived caregiver strain and negative child's emotional functioning contributed positively. Thirteen papers explored the consequences of parental distress, including psychological, family, health, and social/education factors. Distress was correlated with care burden and contributed to family strain, child's symptom burden, and parental protective behavior. Significant correlations were found between parental distress, at diagnosis, and further adjustment of parents and children. Most papers reported correlations between parental distress and psychological condition and quality of life; few studies reported no association. Correlations between maternal depression and child's participation in education and social life were found. Differences on distress were found regarding parents' gender, age, children's group risk, and treatment phases. Longitudinal studies are needed to better understand the phenomenon and its consequences. Future interventions should address parents' mental health needs in an early and ongoing assessment in order to promote healthier outcomes. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
本研究对儿童急性淋巴细胞白血病 (ALL) 诊断后父母痛苦的相关因素及其后果进行了系统回顾。检索了 PubMed、Web of Science 和 APA PsycInfo 数据库。共纳入 28 篇论文，仅有 3 项为纵向研究。15 项研究探讨了父母痛苦的相关因素，包括社会人口学、心理社会、心理、家庭、健康和 ALL 特异性变量。社会支持、疾病认知、应对策略与父母痛苦之间存在相关性，而社会人口学变量的结果则存在矛盾。家庭凝聚力和疾病整体影响与父母痛苦相关。适应力因素对父母痛苦症状有负面影响，而照顾者压力和儿童情绪功能的负面影响与父母痛苦呈正相关。13 篇论文探讨了父母痛苦的后果，包括心理、家庭、健康和社会/教育因素。痛苦与照顾负担有关，并导致家庭紧张、儿童症状负担和父母的保护行为。在诊断时以及父母和儿童的进一步调整中，父母痛苦与心理状况和生活质量之间存在显著相关性。大多数论文报告了父母痛苦与心理状况和生活质量之间的相关性，少数研究报告没有相关性。还发现了母亲抑郁与儿童参与教育和社会生活之间的相关性。父母痛苦在父母性别、年龄、儿童群体风险和治疗阶段方面存在差异。需要进行纵向研究以更好地了解这一现象及其后果。未来的干预措施应在早期和持续评估中满足父母的心理健康需求，以促进更健康的结果。（PsycInfo 数据库记录（c）2024 APA，保留所有权利）。
