Gillibrand Stephanie, Hine Paul, Conyers Rob, Gravestock Jason, Walsh Cole, McAvoy Aneela, Sanders Caroline
University of Manchester, Manchester, UK.
Made by Mortals, Audenshaw, UK.
Res Involv Engagem. 2023 Jun 8;9(1):40. doi: 10.1186/s40900-023-00441-6.
Participatory arts are increasingly recognised as a valuable and accessible mechanism for giving a voice to the experiences of individuals' health and healthcare. In recent years, there has been a move towards embedding participatory arts-based models into public engagement processes. Here, we contribute to the existing literature on the use of participatory arts-based approaches and their role in health research and healthcare practise, focusing on two interlinked approaches, the creation of personas and storytelling. We draw on two recent projects which have utilised these approaches to inform subsequent healthcare research and as a professional training tool to improve patient experience in a healthcare setting. We add to emerging literature to outline the benefits of these approaches in supporting research and training in healthcare settings, with a focus towards the co-produced foundations of these approaches. We demonstrate how such approaches can be utilised to capture different forms of voices, experiences and perspectives to help inform healthcare research and training, rooted in the lived experience of individuals who are directly involved in the creative process of developing personas via storytelling. These approaches challenge the listener to "walk in someone else's shoes", using their own homes and lives as a theatrical set in which to envisage someone else's story, involving the listener in the creative process through (re)imagining the stories and experiences of the characters. Greater use of immersive, co-produced participatory art-based approaches should be used in PPIE to inform research and training in healthcare settings as a means of centring those with lived experience through co-production. Involving those with lived experience, particularly from groups who are traditionally excluded from research, via a process which is based on co-creation and co-production, reorientates the researcher-participant dynamic to fully centre those involved in the research at the heart of the tools used to guide health and healthcare research. In this way, it may also aid in trust and relationship building between institutions and communities in a way which is focused around positive, creative methods to aid health research and healthcare processes. Such approaches may help to break down barriers between academic institutions, healthcare sites and communities.
参与式艺术越来越被视为一种有价值且易于获得的机制,能够让个人的健康和医疗经历得以发声。近年来,出现了一种将基于参与式艺术的模式融入公众参与过程的趋势。在此,我们为关于使用基于参与式艺术的方法及其在健康研究和医疗实践中的作用的现有文献做出贡献,重点关注两种相互关联的方法,即人物角色的创建和故事讲述。我们借鉴了两个近期的项目,这些项目利用这些方法为后续的医疗研究提供信息,并作为一种专业培训工具来改善医疗环境中的患者体验。我们补充新兴文献,概述这些方法在支持医疗环境中的研究和培训方面的益处,重点关注这些方法的共同生产基础。我们展示了如何利用这些方法来捕捉不同形式的声音、经历和观点,以帮助为医疗研究和培训提供信息,这基于直接参与通过故事讲述来开发人物角色的创作过程的个人的生活经历。这些方法促使听众“设身处地”,将他们自己的家和生活作为一个戏剧场景,在其中设想他人的故事,通过(重新)想象角色的故事和经历让听众参与到创作过程中。在公众参与、信息交流与参与(PPIE)中,应更多地使用沉浸式、共同生产的基于参与式艺术的方法,以为医疗环境中的研究和培训提供信息,作为通过共同生产使有生活经历的人成为中心的一种手段。通过基于共同创造和共同生产的过程,让有生活经历的人参与进来,特别是那些传统上被排除在研究之外的群体,重新调整研究者与参与者的动态关系,将参与研究的人完全置于用于指导健康和医疗研究的工具的核心位置。通过这种方式,它还可能有助于以围绕积极、创造性方法来促进健康研究和医疗过程的方式,在机构和社区之间建立信任和关系。此类方法可能有助于打破学术机构、医疗场所和社区之间的障碍。