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接受姑息治疗的癌症患者的支持性护理需求及与健康相关的生活质量

Supportive care needs and health-related quality of life in cancer patients receiving palliative care.

作者信息

Schnabel Astrid, Lordick Florian, Oberth Paula, Neuschulz Markus, Lehmann-Laue Antje, Mehnert-Theuerkauf Anja, Hinz Andreas

机构信息

Department of Medicine (Oncology, Gastroenterology, Hepatology, Pulmonology), University of Leipzig Medical Center, Comprehensive Cancer Center Central Germany (CCCG), Leipzig, Germany.

Department of Medical Psychology and Medical Sociology, University of Leipzig, Leipzig, Germany.

出版信息

Front Psychol. 2023 May 26;14:1166801. doi: 10.3389/fpsyg.2023.1166801. eCollection 2023.

Abstract

OBJECTIVE

Cancer patients receiving palliative care experience a variety of impairments in their quality of life (QoL), and have corresponding supportive care needs (SCNs). The aim of this study was to analyze the relationship between SCNs, satisfaction with QoL dimensions, and the perceived importance of these dimensions.

METHOD

A sample of 152 cancer patients receiving palliative care were included in this cross-sectional study. Eight dimensions of QoL were defined and assessed concerning SCNs, satisfaction, and subjective importance using a new assessment instrument with five-point scales (range 1-5) for each dimension.

RESULTS

Among the eight specific domains examined, the greatest SCNs were observed for ( = 3.18; SD = 1.29). The patients were least satisfied with their ( = 2.60; SD = 0.84), and the dimension ( = 4.14; SD = 0.72) received the highest perceived importance ratings. The eight dimensions' SCNs scores were significantly correlated with each other ( between 0.29 and 0.79); the lowest correlations were found for . The correlations between the satisfaction scores and the SCNs differed from dimension to dimension, with coefficients between -0.32 () and - 0.57 ().

CONCLUSION

The results show that detriments in QoL do not automatically indicate high levels of SCNs in those dimensions. Health care providers should consider both factors, QoL (as measured with QoL questionnaires) and subjectively expressed SCNs, to optimize their patients' care regimens.

摘要

目的

接受姑息治疗的癌症患者在生活质量(QoL)方面存在多种损害,并具有相应的支持性护理需求(SCNs)。本研究的目的是分析SCNs、对生活质量维度的满意度以及这些维度的感知重要性之间的关系。

方法

本横断面研究纳入了152名接受姑息治疗的癌症患者样本。使用一种新的评估工具,针对SCNs、满意度和主观重要性,定义并评估了生活质量的八个维度,每个维度采用五点量表(范围1 - 5)。

结果

在所检查的八个特定领域中,观察到最大的SCNs为 (均值 = 3.18;标准差 = 1.29)。患者对其 的满意度最低(均值 = 2.60;标准差 = 0.84),而维度 (均值 = 4.14;标准差 = 0.72)获得了最高的感知重要性评分。八个维度的SCNs得分彼此显著相关(相关系数在0.29至0.79之间); 之间的相关性最低。满意度得分与SCNs之间的相关性因维度而异,系数在 - 0.32( )至 - 0.57( )之间。

结论

结果表明,生活质量的损害并不自动表明这些维度中存在高水平的SCNs。医疗保健提供者应同时考虑生活质量(通过生活质量问卷测量)和主观表达的SCNs这两个因素,以优化其患者的护理方案。

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