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逆境中的韧性:智障人士如何应对挑战时期。

Resilience in the face of adversity: How people with intellectual disabilities deal with challenging times.

机构信息

Department of Behavioral Expertise, Forensic Child and Youth Care Sciences, University of Amsterdam, The Netherlands.

Forensic Child and Youth Care Sciences, University of Amsterdam, The Netherlands.

出版信息

J Intellect Disabil. 2024 Sep;28(3):661-682. doi: 10.1177/17446295231184504. Epub 2023 Jun 18.

DOI:10.1177/17446295231184504
PMID:37332219
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11465606/
Abstract

In people with intellectual disabilities research and policy are often still focused on risks or the prevention of risks. Research on the process of resilience is in its infancy in the care for people with intellectual disabilities. In the current study, applying a guided photovoice procedure, people with intellectual disabilities were asked what helped them to deal with adverse events. Additionally, informants from their social network were asked to reflect on this question. The following sources of resilience were identified: acceptance, autonomy, beautiful memories, perseverance, physical wellbeing, positive emotions, social skills, spirituality, activities, a home and the social network. Our findings provide practical guidelines for clinicians to talk about resilience with people with intellectual disabilities. Suggestions for future research are made that will contribute to the process of resilience and inclusion of people with intellectual disabilities.

摘要

在智障人士的研究和政策中,往往仍然侧重于风险或风险预防。在智障人士的关怀中,关于适应力过程的研究还处于起步阶段。在当前的研究中,通过应用指导摄影的方法,我们询问智障人士是什么帮助他们应对不良事件。此外,还要求他们的社交网络中的知情人对此问题进行反思。确定了以下适应力的来源:接受、自主、美好回忆、毅力、身体健康、积极情绪、社交技能、精神信仰、活动、家庭和社交网络。我们的研究结果为临床医生与智障人士谈论适应力提供了实用指南。提出了未来研究的建议,这将有助于智障人士的适应力和包容过程。

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本文引用的文献

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J Intellect Disabil. 2025 Sep;29(3):539-554. doi: 10.1177/17446295241229002. Epub 2024 Jan 23.
2
Heterogeneity of Cognitive Profiles in Children and Adolescents with Mild Intellectual Disability (MID).轻度智力障碍(MID)儿童和青少年认知特征的异质性。
Int J Environ Res Public Health. 2022 Jun 13;19(12):7230. doi: 10.3390/ijerph19127230.
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Processing of Positive Memories Technique (PPMT) for Posttraumatic Stress Disorder: A Primer.创伤后应激障碍的积极记忆处理技术(PPMT):入门指南。
J Psychother Integr. 2021 Jun;31(2):195-207. doi: 10.1037/int0000239. Epub 2020 Jul 6.
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Nothing About Us Without Us - Towards Genuine Inclusion of Disabled Scientists and Science Students Post Pandemic.没有我们的参与,就没有我们——在后疫情时代,实现残疾科学家和科学学生真正包容的途径。
Chemistry. 2021 Jul 21;27(41):10489-10494. doi: 10.1002/chem.202100268. Epub 2021 Jun 8.
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Prevalence of and relationship between adverse childhood experiences and family context risk factors among children with intellectual disabilities and borderline intellectual functioning.智力残疾和边缘智力儿童中不良童年经历与家庭环境风险因素的流行情况及两者之间的关系。
Res Dev Disabil. 2021 Jun;113:103935. doi: 10.1016/j.ridd.2021.103935. Epub 2021 Mar 20.
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Working alongside people with intellectual disabilities who have had difficult experiences: Reflections on trauma-informed care within a service context.与有过艰难经历的智障人士一起工作:对服务环境中创伤知情护理的思考。
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7
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