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智障青少年的茁壮成长:一项照片引发式定性研究。

Thriving for Adolescents With Intellectual Disability: A Photo-Elicitation Qualitative Study.

作者信息

Mills Annie S, Sellitto Teresa, Sorken Dallas D, Saunders Katie, Bishop Lauren, Gorter Jan Willem, Weiss Jonathan A

机构信息

Psychology Department, York University, Toronto, Ontario, Canada.

St. Albert, Alberta, Canada.

出版信息

J Appl Res Intellect Disabil. 2025 May;38(3):e70077. doi: 10.1111/jar.70077.

DOI:10.1111/jar.70077
PMID:40523642
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12169918/
Abstract

BACKGROUND

There has been a shift in recent decades towards studying the strengths of people with intellectual disability to promote wellbeing. This study developed a conceptualisation of thriving specific to adolescents with intellectual disability.

METHOD

A photo-elicitation qualitative design was used. Participants were 12 adolescents (ages 12-19) with a diagnosis of intellectual disability and their parents. Adolescents and their parents separately chose photos demonstrating thriving for the adolescent. Semi-structured interviews were conducted.

RESULTS

Reflexive thematic analysis was used. Five core themes that interact and contribute to thriving were developed: Enjoying Life, Developing, Having a Positive Sense of Self, Connecting, and Mattering. Parents also identified the importance of adolescents being Safe & Supported.

CONCLUSIONS

This thriving framework can serve as a guiding template for community supports and future quantitative research studies for adolescents with intellectual disability.

摘要

背景

近几十年来,研究智力残疾者的优势以促进幸福感的方向发生了转变。本研究针对智力残疾青少年提出了一种繁荣发展的概念化理解。

方法

采用照片引发式定性设计。参与者为12名被诊断为智力残疾的青少年(年龄在12至19岁之间)及其父母。青少年及其父母分别选择展示青少年繁荣发展的照片。进行了半结构化访谈。

结果

采用反思性主题分析。形成了五个相互作用并促进繁荣发展的核心主题:享受生活、成长发展、拥有积极的自我认知、建立联系和有重要意义。父母们还指出了青少年获得安全与支持的重要性。

结论

这个繁荣发展框架可作为社区支持以及未来针对智力残疾青少年的定量研究的指导模板。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6ddc/12169918/3e227fc330bb/JAR-38-e70077-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6ddc/12169918/3e227fc330bb/JAR-38-e70077-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6ddc/12169918/3e227fc330bb/JAR-38-e70077-g001.jpg

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本文引用的文献

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Methodological progress note: Purposeful sampling in qualitative research.方法学进展笔记:定性研究中的目的抽样
J Hosp Med. 2025 May;20(5):485-488. doi: 10.1002/jhm.13559. Epub 2024 Nov 24.
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The role of thriving in mental health among people with intellectual and developmental disabilities during the COVID-19 pandemic in Canada.在加拿大 COVID-19 大流行期间,智力和发育障碍人群的心理健康中茁壮成长的作用。
J Appl Res Intellect Disabil. 2024 Jan;37(1):e13177. doi: 10.1111/jar.13177. Epub 2023 Nov 21.
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Including people with intellectual and other cognitive disabilities in research and evaluation teams: A scoping review of the empirical knowledge base.
将智力和其他认知障碍者纳入研究与评估团队:实证知识库的范围综述
J Intellect Disabil. 2023 Jul 18:17446295231189912. doi: 10.1177/17446295231189912.
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Resilience in the face of adversity: How people with intellectual disabilities deal with challenging times.逆境中的韧性:智障人士如何应对挑战时期。
J Intellect Disabil. 2024 Sep;28(3):661-682. doi: 10.1177/17446295231184504. Epub 2023 Jun 18.
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A systematic review of photovoice research methods with people with intellectual disabilities.系统综述:智障人士参与的摄影实践研究方法
J Appl Res Intellect Disabil. 2023 Jul;36(4):725-738. doi: 10.1111/jar.13106. Epub 2023 Apr 16.
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Self-esteem and its relationship with depression and anxiety in adults with intellectual disabilities: a systematic literature review.自尊及其与成年智障人士抑郁和焦虑的关系:系统文献综述。
J Intellect Disabil Res. 2023 Jun;67(6):499-518. doi: 10.1111/jir.13025. Epub 2023 Feb 28.
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Families' Experiences on Safety Needs of Children with Intellectual Disability.家庭对智障儿童安全需求的体验。
Int J Environ Res Public Health. 2022 Nov 18;19(22):15246. doi: 10.3390/ijerph192215246.
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Nat Rev Psychol. 2022;1(11):624-639. doi: 10.1038/s44159-022-00099-z. Epub 2022 Sep 5.
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J Appl Res Intellect Disabil. 2020 Nov;33(6):1390-1404. doi: 10.1111/jar.12767. Epub 2020 Jun 15.