Alipour Fatemeh, Kooshki Abdolreza Mohammadi, Norouzi Elahe, Madani Hila, Shahvari Zahra
Eye Research Center, Farabi Eye Hospital, Tehran University of Medical Sciences, Gachsaran, Iran.
Pediatric Growth and Development Research Center, Iran University of Medical Sciences, Rasoul-e-Akram Medical Center, Gachsaran, Iran.
Iran J Nurs Midwifery Res. 2023 Apr 14;28(2):208-213. doi: 10.4103/ijnmr.ijnmr_320_21. eCollection 2023 Mar-Apr.
Contact lenses play a substantial role in the management of childhood aphakia. However, the use and care of the lenses can be challenging. Despite its prevalence, the phenomenon of living with children with aphakia is not explained in Iran yet. The aim of this study was to illuminate the lived experience of the parents of children with aphakia.
This hermeneutic phenomenological study was conducted on the parents who have been referred to Farabi Eye Hospital of Tehran, Iran in 2019, whose children were diagnosed with aphakia, and the condition was corrected with contact lenses. Qualitative semi-structured interviews were conducted with 20 parents of children with congenital cataract. Analysis was based on the framework of Diekelmann enabled data interpretation and elaboration of shared themes.
The 20 parents involved in the study consisted of 12 women and 8 men. The participant's experiences were classified in 4 categories: Self-Ignorance, Troubled mind, Self-Regulation, and Coping with the problem while hoping for the future.
"Self-Ignorance" and "Troubled Mind" indicates that because of the risk of burnout in the long-term process of treatment, the psychological support of parents is necessary. Psychological support will continue until the parents acquire the ability of self-regulation. Giving a realistic hope to families is a core element in psychological support.
隐形眼镜在儿童无晶状体的治疗中起着重要作用。然而，镜片的使用和护理可能具有挑战性。尽管这种情况很普遍，但伊朗尚未对与无晶状体儿童共同生活的现象进行解释。本研究的目的是阐明无晶状体儿童父母的生活经历。
本诠释现象学研究针对2019年转诊至伊朗德黑兰法拉比眼科医院的父母进行，他们的孩子被诊断为无晶状体，并通过隐形眼镜进行矫正。对20名先天性白内障患儿的父母进行了定性半结构化访谈。分析基于迪克尔曼框架，以实现数据解释和共同主题的阐述。
参与研究的20名父母中，有12名女性和8名男性。参与者的经历分为四类：自我无知、心烦意乱、自我调节以及在期待未来的同时应对问题。
“自我无知”和“心烦意乱”表明，由于长期治疗过程中存在倦怠风险，父母需要心理支持。心理支持将持续到父母获得自我调节能力。给家庭一个现实的希望是心理支持的核心要素。
