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Translational Justice in Human Gene Editing: Bringing End User Engagement and Policy Together.

作者信息

Allyse Megan A, Meagher Karen M, Michie Marsha, Isasi Rosario, Ormond Kelly E, Bonhomme Natasha, Bombard Yvonne, Howard Heidi, Musunuru Kiran, Riggan Kirsten A, Rubeck Sabina

机构信息

Mayo Clinic.

Case Western Reserve University.

出版信息

Am J Bioeth. 2023 Jul;23(7):55-58. doi: 10.1080/15265161.2023.2207513.

Abstract
摘要

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本文引用的文献

1
The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research.
Am J Bioeth. 2023 Jul;23(7):9-16. doi: 10.1080/15265161.2023.2207502. Epub 2023 May 19.
2
Regulating genome editing technologies: a comparison of expert recommendations in the U.K. and in the U.S.A.
Emerg Top Life Sci. 2019 Nov 27;3(6):701-705. doi: 10.1042/ETLS20180101.
3
What do we do now?: Responding to claims of germline gene editing in humans.
Genet Med. 2019 Oct;21(10):2181-2183. doi: 10.1038/s41436-019-0492-3. Epub 2019 Mar 27.
4
Gene modification therapies: views of parents of people with Down syndrome.
Genet Med. 2019 Feb;21(2):487-492. doi: 10.1038/s41436-018-0077-6. Epub 2018 Jun 21.
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Do guidelines create uniformity in medical practice?
Soc Sci Med. 2010 Jan;70(2):209-16. doi: 10.1016/j.socscimed.2009.10.016. Epub 2009 Oct 29.
6
Toward a biopsychosocial model for 21st-century genetics.
Fam Process. 2005 Mar;44(1):3-24. doi: 10.1111/j.1545-5300.2005.00039.x.

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