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出生后 4 至 6 个月时父母的生活质量:极早产儿出生的影响。

Quality of Life of Mothers and Fathers 4 to 6 Months After Birth: The Effect of a Very Preterm Delivery.

机构信息

Nursing Department, University of Évora, Évora, Portugal.

Comprehensive Health Research Center (CHRC), University of Évora, Évora, Portugal.

出版信息

Matern Child Health J. 2023 Oct;27(10):1719-1725. doi: 10.1007/s10995-023-03739-9. Epub 2023 Jun 22.

Abstract

OBJECTIVES

The sparse literature on the effect of a preterm delivery on parents' quality of life (QoL) yields inconsistent results, restricting their analysis to mothers. The present study aimed to assess the effect of a very preterm delivery on parents' gender-specific perception of QoL, 4 to 6 months after birth.

METHODS

A total of 117 parents of very preterm infants hospitalized at birth in a level III Neonatal Intensive Care Unit, and 214 parents of never hospitalized full-term infants born in a public maternity, both located in the North of Portugal, participated in the study, 4 to 6 months after delivery (November 2013-June 2015). The Portuguese version of the World Health Organization Quality of Life - BREF Inventory was applied and scores were transformed to reflect a 0 to 100 scale.

RESULTS

The mean [standard deviation (SD)] of overall QoL ranged between 72.1 (13.3) among mothers of full-term infants and 74.6 (12.5) among mothers of very preterm infants. The perception of QoL was not significantly different among parents of very preterm and full-term infants, according to gender. The highest scores were observed in the psychological and physical dimensions, for both mothers and fathers.

CONCLUSIONS FOR PRACTICE

The lack of differences on the perception of QoL among mothers and fathers of very preterm and full-term infants, highlights the need to deeply understand and explore the influence of accommodation mechanisms, the extended family/community and health policies on parental QoL trajectories.

摘要

目的

早产儿对父母生活质量(QoL)影响的文献稀少,且结果不一致,因此限制了对母亲的分析。本研究旨在评估极早产儿出生后 4 至 6 个月时对父母特定性别 QoL 的影响。

方法

共有 117 名极早产儿的父母(在葡萄牙北部的三级新生儿重症监护病房住院)和 214 名未住院的足月婴儿的父母(在公立医院出生)参与了这项研究,在分娩后 4 至 6 个月(2013 年 11 月至 2015 年 6 月)进行了研究。采用世界卫生组织生活质量 - BREF 量表葡萄牙语版进行评估,并将评分转换为 0 至 100 的分数。

结果

足月婴儿母亲的总体 QoL 平均值(标准差)为 72.1(13.3),极早产儿母亲的总体 QoL 平均值为 74.6(12.5)。根据性别,极早产儿和足月婴儿的父母对 QoL 的感知没有显著差异。母亲和父亲在心理和生理维度的得分最高。

结论

极早产儿和足月婴儿的父母对 QoL 的感知没有差异,这突显了需要深入理解和探索适应机制、大家庭/社区和卫生政策对父母 QoL 轨迹的影响。

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