Theed Rachael, Eccles Fiona, Simpson Jane
a Division of Health Research , Lancaster University , Lancaster , United Kingdom.
Aging Ment Health. 2017 Oct;21(10):1007-1016. doi: 10.1080/13607863.2016.1247414. Epub 2016 Nov 2.
The aim of this qualitative meta-synthesis was to search and then synthesise family caregivers' experiences of providing care to individuals with Parkinson's disease (PD).
A systematic search resulted in the identification of 11 qualitative studies. Noblit and Hare's seven-stage approach was used to provide a higher-order interpretation of how family caregivers' experienced the effects of taking on a caregiving role.
The process of reciprocal translation resulted in four overarching themes: (1) the need to carry on as usual - 'the caregiver must continue with his life'; (2) the importance of support in facilitating coping - 'I'm still going back to the support group'; (3) the difficult balancing act between caregiving and caregiver needs - 'I cannot get sick because I'm a caregiver'; (4) conflicts in seeking information and knowledge - 'maybe better not to know'.
The themes reflected different aspects of family caregivers' lives that were affected as a result of caring for a relative diagnosed with PD and these raise challenges for more simplistic theories of family caring and appropriate support structures. The findings also highlight several recommendations for clinical practice.
本定性元分析的目的是检索并综合家庭照顾者对帕金森病（PD）患者提供照顾的经历。
系统检索后确定了11项定性研究。采用诺布利特和黑尔的七阶段方法，对家庭照顾者承担照顾角色的经历影响进行更高层次的解读。
双向翻译过程产生了四个总体主题：（1）照常生活的必要性——“照顾者必须继续他的生活”；（2）支持在促进应对方面的重要性——“我仍然会回到支持小组”；（3）照顾与照顾者需求之间艰难的平衡行为——“我不能生病，因为我是照顾者”；（4）寻求信息和知识时的冲突——“也许最好不知道”。
这些主题反映了家庭照顾者因照顾被诊断患有PD的亲属而受到影响的生活的不同方面，这些对更简单的家庭照顾理论和适当的支持结构提出了挑战。研究结果还突出了对临床实践的若干建议。
