Miyamoto Robin Rob, Ono Craig, Faustina Kalani, Miyamoto Kristiann, Nakamatsu Paulette, Lew Daphne
Shriners Children's Hawaii, 1310 Punahou Street, Honolulu, HI 96826 USA.
Washington University School of Medicine, St. Louis, 660 S Euclid Avenue, St. Louis, MO 63110 USA.
Curr Psychol. 2023 Apr 25:1-18. doi: 10.1007/s12144-023-04543-y.
The theoretical literature on resilience shows there is no consensus regarding whether resilience is an ability; interactive process involving the individual, group, and community; both ability and process; or favorable outcome. A definitive part of the research on children's resilience featured the assessment of an indicator of resilience (e.g., health-related quality of life) and involved pediatric patients with prolonged illnesses. The present study examined resilience directly as an ability and process, and related protective or risk variables, with validated instruments among adolescent patients with chronic orthopedic conditions. One-hundred fifteen adolescent patients assented (parents/legally authorized representatives consented), with 73 completing the study questionnaire. Fifteen, 47, and 10 scored low, normal, or high, respectively, on resilience-ability (one with missing data). These three groups differed significantly on the number of years living with family, individual personal skills, self-esteem, negative affect, anxiety, and depression. Resilience-ability positively correlated with number of years living with family, individual personal skills, and self-esteem, but negatively with duration of chronic orthopedic condition, negative affect, anxiety, and depression. Duration of chronic orthopedic condition negatively correlated with individual peer support among those scoring high on resilience-ability. For girls, duration of chronic orthopedic condition negatively correlated with resilience-ability, educational context, and self-esteem, but positively correlated with caregiver physical and psychological caregiving for boys. Findings underscored the consequence of resilience for these adolescent patients, with their chronic orthopedic conditions affecting daily function and life quality. Implementation of best practices to nurture and enhance their health-related resilience will promote a lifetime of well-being.
关于复原力的理论文献表明，对于复原力是一种能力、涉及个人、群体和社区的互动过程、既是能力又是过程还是有利结果，目前尚无共识。儿童复原力研究的一个明确部分是对复原力指标（如与健康相关的生活质量）进行评估，且涉及患有长期疾病的儿科患者。本研究使用经过验证的工具，直接将复原力作为一种能力和过程，以及相关的保护或风险变量，在患有慢性骨科疾病的青少年患者中进行了研究。115名青少年患者表示同意（父母/法定授权代表已同意），其中73人完成了研究问卷。在复原力能力方面，分别有15人、47人和10人得分低、正常或高（1人有缺失数据）。这三组在与家人共同生活的年数、个人技能、自尊、消极情绪、焦虑和抑郁方面存在显著差异。复原力能力与与家人共同生活的年数、个人技能和自尊呈正相关，但与慢性骨科疾病的持续时间、消极情绪、焦虑和抑郁呈负相关。在复原力能力得分高的人群中，慢性骨科疾病的持续时间与个体同伴支持呈负相关。对于女孩来说，慢性骨科疾病的持续时间与复原力能力、教育背景和自尊呈负相关，但对于男孩来说，与照顾者的身体和心理照顾呈正相关。研究结果强调了复原力对这些青少年患者的重要性，他们的慢性骨科疾病会影响日常功能和生活质量。实施最佳实践以培养和增强他们与健康相关的复原力将促进一生的幸福。
