Schaffer Maria, McLoone Jordana K, Wakefield Claire E, Brierley Mary-Ellen, Girgis Afaf, McCarthy Maria C, Thornton-Benko Elysia, Chan Raymond J, Johnston Karen A, Cohn Richard J, Signorelli Christina
Kids Cancer Centre, Sydney Children's Hospital, Randwick, NSW, Australia.
School of Women's and Children's Health, UNSW Medicine, University of New South Wales, Sydney, NSW, Australia.
PEC Innov. 2021 Nov 26;1:100010. doi: 10.1016/j.pecinn.2021.100010. eCollection 2022 Dec.
We assessed the acceptability of, and perceived benefits/barriers to, using Electronic health (eHealth) technology for childhood cancer survivorship care.
We interviewed survivors, their parents, and their nominated GP. We described a hypothetical eHealth tool to manage survivorship care and asked their likely use of, and perceived benefits/concerns for, the use of the tool.
31 survivors (mean age = 27.0), 29 parents (survivors' mean age = 12.6), and 51 GPs (mean years practising = 28.2) participated. Most survivors/parents (85%) and GPs (75%) indicated that they would be willing to use an eHealth tool. Survivors/parents reported that an eHealth tool would increase their confidence in their ability, and their GP's ability, to manage their survivorship care. GPs agreed that an eHealth tool would provide easier access to survivors' medical information and increase their capacity to provide support during survivorship. Some GPs (7%) and survivors (43%) reported being hesitant to use eHealth tools due to privacy/security concerns.
Overall, eHealth tools appear acceptable and may help to improve the management of late effects for childhood cancer survivors and assist their GPs to coordinate their care.
Concerns raised by key stakeholders should be addressed in the design of eHealth technologies to optimise their uptake and effectiveness.
我们评估了在儿童癌症幸存者护理中使用电子健康（eHealth）技术的可接受性以及感知到的益处/障碍。
我们采访了幸存者、他们的父母以及他们指定的全科医生。我们描述了一种用于管理幸存者护理的假设性电子健康工具，并询问他们对该工具的可能使用情况以及使用该工具的感知益处/担忧。
31名幸存者（平均年龄 = 27.0岁）、29名父母（幸存者平均年龄 = 12.6岁）和51名全科医生（平均执业年限 = 28.2年）参与了调查。大多数幸存者/父母（85%）和全科医生（75%）表示他们愿意使用电子健康工具。幸存者/父母报告称，电子健康工具会增强他们对自身以及全科医生管理其幸存者护理能力的信心。全科医生一致认为，电子健康工具将使他们更容易获取幸存者的医疗信息，并增强他们在幸存者护理期间提供支持的能力。一些全科医生（7%）和幸存者（43%）报告称，由于隐私/安全问题，他们对使用电子健康工具持犹豫态度。
总体而言，电子健康工具似乎是可接受的，可能有助于改善儿童癌症幸存者后期影响的管理，并协助他们的全科医生协调护理。
在电子健康技术的设计中应解决关键利益相关者提出的担忧，以优化其采用率和有效性。
