Department of Medicine, Geriatrics Program, Sinai Health System, University Health Network, Toronto, Canada.
Department of Occupational Science & Occupational Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, Canada.
J Racial Ethn Health Disparities. 2024 Jun;11(3):1345-1373. doi: 10.1007/s40615-023-01613-6. Epub 2023 Jun 29.
Despite the high prevalence of stroke among South Asian communities in high-income countries, a comprehensive understanding of their unique experiences and needs after stroke is lacking. This study aimed to synthesize the literature examining the experiences and needs of South Asian community members impacted by stroke and their family caregivers residing in high-income countries. A scoping review methodology was utilized. Data for this review were identified from seven databases and hand-searching reference lists of included studies. Study characteristics, purpose, methods, participant characteristics, results, limitations, recommendations, and conclusions were extracted. Data were analyzed using descriptive qualitative analysis. In addition, a consultative focus group exercise with six South Asian community members who had experienced a stroke and a program facilitator was conducted to inform the review interpretations. A total of 26 articles met the inclusion criteria and were analyzed. Qualitative analysis identified four descriptive categories: (1) rationale for studying the South Asian stroke population (e.g., increasing South Asian population and stroke prevalence), (2) stroke-related experiences (e.g., managing community support versus stigma and caregiving expectations), (3) stroke service challenges (e.g., language barriers), and (4) stroke service recommendations to address stroke service needs (e.g., continuity of care). Several cultural factors impacted participant experiences, including cultural beliefs about illness and caregiving. Focus group participants from our consultation activity agreed with our review findings. The clinical and research recommendations identified in this review support the need for culturally appropriate services for South Asian communities across the stroke care continuum; however, more research is necessary to inform the design and structure of culturally appropriate stroke service delivery models.
尽管南亚社区在高收入国家中风的发病率很高，但对他们中风后的独特经历和需求的全面了解却很缺乏。本研究旨在综合分析研究南亚社区中风患者及其居住在高收入国家的家属的经历和需求的文献。采用了范围综述方法。这项综述的数据来自七个数据库，并对纳入研究的参考文献进行了手工检索。提取了研究特征、目的、方法、参与者特征、结果、局限性、建议和结论。使用描述性定性分析对数据进行了分析。此外，还与六名经历过中风的南亚社区成员和一名项目协调员进行了咨询焦点小组活动，以告知综述的解释。共有 26 篇文章符合纳入标准并进行了分析。定性分析确定了四个描述性类别：（1）研究南亚中风人群的理由（例如，南亚人口增加和中风患病率上升）；（2）中风相关经历（例如，管理社区支持与耻辱感和照顾期望）；（3）中风服务挑战（例如，语言障碍）；（4）解决中风服务需求的中风服务建议（例如，连续性护理）。一些文化因素影响了参与者的经历，包括对疾病和照顾的文化信念。我们咨询活动的焦点小组参与者同意我们的综述结果。本综述中提出的临床和研究建议支持在中风护理全过程中为南亚社区提供文化适宜的服务，但需要更多的研究来为文化适宜的中风服务提供模式的设计和结构提供信息。
