社交媒体在乳腺癌护理与 survivorship 中的作用：一项叙述性综述。 （注：“survivorship”常见释义为“生存、幸存者身份等”，这里结合语境可能是指乳腺癌患者存活后的相关情况等，因未结合完整文献较难精准翻译这个词，暂保留英文供参考）
The Role of Social Media in Breast Cancer Care and Survivorship: A Narrative Review.
作者信息
Aristokleous Iliana, Karakatsanis Andreas, Masannat Yazan A, Kastora Stavroula L
机构信息
Department of Surgery, Breast Unit, Uppsala University Hospital, Uppsala, Sweden.
Department of Surgical Sciences, Faculty of Medicine, Uppsala University, Uppsala, Sweden.
出版信息
Breast Care (Basel). 2023 Apr;18(3):193-199. doi: 10.1159/000531136. Epub 2023 May 19.
Abstract
BACKGROUND
Female breast cancer (BC) is the most diagnosed cancer and the leading cause of malignancy-related death worldwide. With the widespread utilisation of the Internet, social media has presented an invaluable yet underemployed tool in the context of BC medical information dissemination, support hub formation, and patient empowerment.
SUMMARY
In this narrative review, we explore the untapped potential of social media in this context, caveats, and future directions that may aid in formulating a new era of patient led, in addition to patient-centred care.
KEY MESSAGES
Social media represents a powerful tool with significant potential to enable the seeking and sharing of BC-related information, and enhance patient education, communication, engagement, and empowerment. However, its use is associated with a number of limitations, including confidentiality and addiction issues, excessive and inaccurate information, and a possibility of jeopardising the patient-doctor relationship. Further research is needed to shed more light on this topic.
摘要
背景
女性乳腺癌（BC）是全球诊断率最高的癌症，也是恶性肿瘤相关死亡的主要原因。随着互联网的广泛应用，社交媒体在乳腺癌医疗信息传播、支持中心形成以及患者赋权方面已成为一种宝贵但未得到充分利用的工具。
总结
在这篇叙述性综述中，我们探讨了社交媒体在这方面尚未开发的潜力、注意事项以及未来方向，这些可能有助于开创一个由患者主导且以患者为中心的护理新时代。
关键信息
社交媒体是一个强大的工具，具有极大潜力，能够促进乳腺癌相关信息的搜索与共享，增强患者教育、沟通、参与度及赋权。然而，其使用存在一些限制，包括保密和成瘾问题、信息过多及不准确，以及可能危及医患关系。需要进一步研究以更深入地了解这一主题。
相似文献
1
The Role of Social Media in Breast Cancer Care and Survivorship: A Narrative Review.社交媒体在乳腺癌护理与 survivorship 中的作用：一项叙述性综述。 （注：“survivorship”常见释义为“生存、幸存者身份等”，这里结合语境可能是指乳腺癌患者存活后的相关情况等，因未结合完整文献较难精准翻译这个词，暂保留英文供参考）
Breast Care (Basel). 2023 Apr;18(3):193-199. doi: 10.1159/000531136. Epub 2023 May 19.
2
Promoting and supporting self-management for adults living in the community with physical chronic illness: A systematic review of the effectiveness and meaningfulness of the patient-practitioner encounter.促进和支持社区中患有慢性身体疾病的成年人进行自我管理：对医患互动的有效性和意义的系统评价。
JBI Libr Syst Rev. 2009;7(13):492-582. doi: 10.11124/01938924-200907130-00001.
3
A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication.医疗保健的一个新维度：社交媒体用于健康传播的用途、益处及局限性的系统综述
J Med Internet Res. 2013 Apr 23;15(4):e85. doi: 10.2196/jmir.1933.
4
Pregnancy-Related Information Seeking and Sharing in the Social Media Era Among Expectant Mothers: Qualitative Study.社交媒体时代准妈妈的妊娠相关信息寻求与分享：定性研究
J Med Internet Res. 2019 Dec 4;21(12):e13694. doi: 10.2196/13694.
5
Effect of social media interventions on the education and communication among patients with cancer: a systematic review protocol.社交媒体干预对癌症患者教育和交流的影响：系统评价方案
BMJ Open. 2022 Nov 30;12(11):e066550. doi: 10.1136/bmjopen-2022-066550.
6
"Mommy Blogs" and the Vaccination Exemption Narrative: Results From A Machine-Learning Approach for Story Aggregation on Parenting Social Media Sites.“妈妈博客”与疫苗接种豁免叙事：一种用于育儿社交媒体网站故事聚合的机器学习方法的结果
JMIR Public Health Surveill. 2016 Nov 22;2(2):e166. doi: 10.2196/publichealth.6586.
7
Internet and social media for health-related information and communication in health care: preferences of the Dutch general population.互联网和社交媒体在医疗保健中用于获取健康相关信息及交流：荷兰普通民众的偏好
J Med Internet Res. 2013 Oct 2;15(10):e220. doi: 10.2196/jmir.2607.
8
Social Media and Medical Education in the Context of the COVID-19 Pandemic: Scoping Review.COVID-19大流行背景下的社交媒体与医学教育：范围综述
JMIR Med Educ. 2021 Apr 12;7(2):e25892. doi: 10.2196/25892.
9
The Role of Social Network Technologies in Online Health Promotion: A Narrative Review of Theoretical and Empirical Factors Influencing Intervention Effectiveness.社交网络技术在在线健康促进中的作用：对影响干预效果的理论和实证因素的叙述性综述
J Med Internet Res. 2015 Jun 11;17(6):e141. doi: 10.2196/jmir.3662.
10
Social Media and Online Communication: Clinical Urology Practice in the 21st Century.社交媒体与在线交流：21世纪的临床泌尿外科实践
Urol Pract. 2015 Jan;2(1):2-6. doi: 10.1016/j.urpr.2014.08.005. Epub 2014 Oct 27.
引用本文的文献
1
Readability analysis of breast cancer resources shared on X-implications for patient education and the potential of AI.X 上分享的乳腺癌资源的可读性分析——对患者教育的启示及人工智能的潜力
Breast Cancer Res Treat. 2025 Aug 6. doi: 10.1007/s10549-025-07799-z.
2
Cross-Platform Analysis of Mammography Narratives: A Comparative Study on Social Media Engagement.乳腺钼靶摄影叙事的跨平台分析：社交媒体参与度的比较研究
J Patient Cent Res Rev. 2025 Jan 28;12(1):9-20. doi: 10.17294/2330-0698.2100. eCollection 2025 Winter.
3
Comparative readability of information on different treatment options for breast cancer, based on WeChat public accounts.基于微信公众号的乳腺癌不同治疗方案信息的可读性比较
PLoS One. 2025 Jan 24;20(1):e0317032. doi: 10.1371/journal.pone.0317032. eCollection 2025.
4
A roadmap to reduce the incidence and mortality of breast cancer by rethinking our approach to women's health.通过重新思考我们对待女性健康的方式来降低乳腺癌发病率和死亡率的路线图。
Breast Cancer Res Treat. 2025 Jan;209(1):1-14. doi: 10.1007/s10549-024-07522-4. Epub 2024 Nov 12.
5
Results of the Italian cross-sectional web-based survey "Nutrition and breast cancer, what would you like to know?" An attempt to collect and respond to patients' information needs, through social media.意大利基于网络的横断面调查“营养与乳腺癌，你想了解什么？”的结果。通过社交媒体收集并回应患者信息需求的一次尝试。
Front Oncol. 2024 Sep 25;14:1436610. doi: 10.3389/fonc.2024.1436610. eCollection 2024.
6
In Their Own Words: Patient Narratives of Breast Cancer Surgery and Reconstruction.用他们自己的话：乳腺癌手术与重建的患者叙述
Aesthetic Plast Surg. 2025 Feb;49(3):758-766. doi: 10.1007/s00266-024-04279-5. Epub 2024 Oct 1.
7
Factors Affecting Breast Cancer Screening Behavior Among Women in Saudi Arabia: A Retrospective Cross-Sectional Study.沙特阿拉伯女性乳腺癌筛查行为的影响因素：一项回顾性横断面研究
Cureus. 2024 Apr 15;16(4):e58324. doi: 10.7759/cureus.58324. eCollection 2024 Apr.
8
Characterization of the role of Facebook groups for patients who use scalp cooling therapy: a survey study.头皮冷却疗法使用者的 Facebook 群组角色特征：一项调查研究。
Support Care Cancer. 2024 May 15;32(6):351. doi: 10.1007/s00520-024-08534-y.
本文引用的文献
1
Comprehending the impact of #Breastcancer, #Breastsurgery and related hashtags on Twitter: A content and social network cross-sectional analysis #Breastcancer#Breastsurgery.理解#乳腺癌、#乳房手术及相关主题标签在推特上的影响：一项内容与社交网络横断面分析#乳腺癌#乳房手术
Eur J Surg Oncol. 2023 Apr;49(4):716-723. doi: 10.1016/j.ejso.2023.01.016. Epub 2023 Jan 18.
2
Social media and sociodemographic characteristics associated with general health in breast cancer patients: a cross-sectional study.社交媒体使用与乳腺癌患者一般健康状况的社会人口学特征的关系：一项横断面研究。
Pan Afr Med J. 2022 Oct 24;43:95. doi: 10.11604/pamj.2022.43.95.36791. eCollection 2022.
3
Cancer statistics, 2023.癌症统计数据，2023 年。
CA Cancer J Clin. 2023 Jan;73(1):17-48. doi: 10.3322/caac.21763.
4
Social Media and Medical Misinformation: Confronting New Variants of an Old Problem.社交媒体与医学错误信息：应对一个老问题的新变体
JAMA. 2022 Oct 11;328(14):1393-1394. doi: 10.1001/jama.2022.17191.
5
Celebrities and Breast Cancer: A Multidimensional Quali-Quantitative Analysis of News Stories Shared on Social Media.名人与乳腺癌：社交媒体新闻报道的多维定性定量分析。
Int J Environ Res Public Health. 2022 Aug 5;19(15):9676. doi: 10.3390/ijerph19159676.
6
Effectiveness of internet-based support interventions on patients with breast cancer: a systematic review and narrative synthesis.基于互联网的支持干预措施对乳腺癌患者的疗效：系统评价和叙述性综合。
BMJ Open. 2022 May 31;12(5):e057664. doi: 10.1136/bmjopen-2021-057664.
7
Association Between Social Media Use and Cancer Screening Awareness and Behavior for People Without a Cancer Diagnosis: Matched Cohort Study.社交媒体使用与无癌症诊断人群癌症筛查意识和行为的关联：匹配队列研究。
J Med Internet Res. 2021 Aug 27;23(8):e26395. doi: 10.2196/26395.
8
Social Media and mHealth Technology for Cancer Screening: Systematic Review and Meta-analysis.社交媒体和移动医疗技术在癌症筛查中的应用：系统评价和荟萃分析。
J Med Internet Res. 2021 Jul 30;23(7):e26759. doi: 10.2196/26759.
9
Long-Term Patient Satisfaction and Quality of Life After Breast-Conserving Therapy: A Prospective Study Using the BREAST-Q.保乳治疗后的长期患者满意度和生活质量：使用 BREAST-Q 的前瞻性研究。
Ann Surg Oncol. 2021 Dec;28(13):8742-8751. doi: 10.1245/s10434-021-10377-4. Epub 2021 Jul 19.
10
Global Cancer Statistics 2020: GLOBOCAN Estimates of Incidence and Mortality Worldwide for 36 Cancers in 185 Countries.《全球癌症统计数据 2020：全球 185 个国家和地区 36 种癌症的发病率和死亡率估计》。
CA Cancer J Clin. 2021 May;71(3):209-249. doi: 10.3322/caac.21660. Epub 2021 Feb 4.
Zotero 插件