Implementation Science Unit, Center for Infectious Disease Research in Zambia, Lusaka, Zambia
Department of Public Health, Environments and Society, London School of Hygiene and Tropical Medicine Faculty of Public Health and Policy, London, UK.
BMJ Open. 2023 Jul 5;13(7):e069086. doi: 10.1136/bmjopen-2022-069086.
To compare unannounced standardised patient approach (eg, mystery clients) with typical exit interviews for assessing patient experiences in HIV care (eg, unfriendly providers, long waiting times). We hypothesise standardised patients would report more negative experiences than typical exit interviews affected by social desirability bias.
Cross-sectional surveys in 16 government-operated HIV primary care clinics in Lusaka, Zambia providing antiretroviral therapy (ART).
3526 participants aged ≥18 years receiving ART participated in the exit surveys between August 2019 and November 2021.
Systematic sample (every n file) of patients in clinic waiting area willing to be trained received pre-visit training and post-visit interviews. Providers were unaware of trained patients.
We compared patient experience among patients who received brief training prior to their care visit (explaining each patient experience construct in the exit survey, being anonymous, without manipulating behaviour) with those who did not undergo training on the survey prior to their visit.
Among 3526 participants who participated in exit surveys, 2415 were untrained (56% female, median age 40 (IQR: 32-47)) and 1111 were trained (50% female, median age 37 (IQR: 31-45)). Compared with untrained, trained patients were more likely to report a negative care experience overall (adjusted prevalence ratio (aPR) for aggregate sum score: 1.64 (95% CI: 1.39 to 1.94)), with a greater proportion reporting feeling unwelcome by providers (aPR: 1.71 (95% CI: 1.20 to 2.44)) and witnessing providers behaving rude (aPR: 2.28 (95% CI: 1.63 to 3.19)).
Trained patients were more likely to identify suboptimal care. They may have understood the items solicited better or felt empowered to be more critical. We trained existing patients, unlike studies that use 'standardised patients' drawn from outside the patient population. This low-cost strategy could improve patient-centred service delivery elsewhere.
Assessment was nested within a parent study; www.pactr.org registered the parent study (PACTR202101847907585).
比较不事先通知的标准化患者方法(例如神秘客户)与评估 HIV 护理中患者体验的典型退出访谈(例如不友好的提供者、长时间等待)。我们假设标准化患者报告的负面体验会比受社会期望偏差影响的典型退出访谈更多。
赞比亚卢萨卡的 16 家政府运营的 HIV 初级保健诊所进行的横断面调查,提供抗逆转录病毒治疗(ART)。
2019 年 8 月至 2021 年 11 月期间,年龄≥18 岁接受 ART 的 3526 名参与者参加了退出调查。
愿意接受培训的诊所候诊区患者的系统抽样(每 n 个文件)接受预访培训和随访访谈。提供者不知道接受过培训的患者。
在参加退出调查的 3526 名参与者中,有 2415 名未接受培训(56%为女性,中位年龄为 40(IQR:32-47)),1111 名接受培训(50%为女性,中位年龄为 37(IQR:31-45))。与未接受培训的患者相比,接受培训的患者更有可能总体上报告负面的护理体验(综合总分的调整患病率比(aPR):1.64(95%CI:1.39-1.94)),更大比例的人报告说感到提供者不友好(aPR:1.71(95%CI:1.20-2.44))和目睹提供者行为粗鲁(aPR:2.28(95%CI:1.63-3.19))。
接受培训的患者更有可能发现护理不佳。他们可能更好地理解了征求的项目,或者感到有能力更加批评。我们培训的是现有患者,而不是使用来自患者群体之外的“标准化患者”的研究。这种低成本策略可以在其他地方改善以患者为中心的服务提供。
评估嵌套在一个父研究中;www.pactr.org 注册了父研究(PACTR202101847907585)。