The Department of Health Care Science/Palliative Research Centre, Marie Cederschiöld University, Stockholm, Sweden.
Tema Cancer, BES: Breast-Endocrine Tumours and Sarcoma, Karolinska University Hospital, Stockholm, Sweden.
Death Stud. 2024;48(4):407-416. doi: 10.1080/07481187.2023.2231388. Epub 2023 Jul 13.
The purpose of this study was to (1) explore associations between preparedness for caregiving and preparedness for death among family caregivers of patients with advanced cancer and (2) explore modifiable preparedness factors, such as communication and support. Data was derived from a baseline questionnaire collected in specialized home care. The questionnaire included socio-demographics, the Preparedness for Caregiving Scale, and single items addressing preparedness for death, received support and communication about incurable illness. Data was analyzed using descriptive statistics and Spearman correlations. Altogether 39 family caregivers participated. A significant association was found between preparedness for caregiving and preparedness for death. Received support and communication about the illness was associated with higher levels of preparedness for caregiving and death. This study contributes to evidence on the association between preparedness for caregiving and death, but also that communication and support employed by healthcare professionals could improve family caregiver preparedness and wellbeing.
(1) 探讨晚期癌症患者家庭照顾者的照顾准备情况与死亡准备情况之间的关联；(2) 探讨可改变的准备因素，如沟通和支持。数据来源于专门的家庭护理中的基线问卷。该问卷包括社会人口统计学、照顾准备量表以及关于临终准备、获得支持和关于不治之症的沟通的单项问题。使用描述性统计和斯皮尔曼相关性进行数据分析。共有 39 名家庭照顾者参与。照顾准备情况与临终准备情况之间存在显著关联。关于疾病的支持和沟通与更高的照顾和死亡准备程度相关。本研究有助于证明照顾准备情况与死亡之间的关联，还表明医护人员采用的沟通和支持可以提高家庭照顾者的准备程度和幸福感。
