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年轻乳腺癌女性同伴支持活动的经验及对基于元宇宙项目的需求:一项定性研究

Experiences of peer support activities and the need for a metaverse-based program in young women with breast cancer: A qualitative study.

作者信息

Ahn Jeonghee, Lee Kyoung-Eun

机构信息

Department of Medicine, University of Ulsan College of Medicine, Seoul, Republic of Korea.

Department of Nursing Science, SunMoon University, 70, Sunmoon-ro 221beon-gil, Tangjeong-myeon, Asan-si, Chungcheongnam-do, Republic of Korea.

出版信息

Asia Pac J Oncol Nurs. 2023 May 30;10(7):100253. doi: 10.1016/j.apjon.2023.100253. eCollection 2023 Jul.

Abstract

OBJECTIVE

This study aimed to explore young breast cancer survivors' experiences of peer support activities and their need for a metaverse-based peer support program.

METHODS

This qualitative content analysis study involved 15 young women with breast cancer under the age of 40. Participants with diverse experiences in peer support activities were purposefully selected. Data were collected in March 2023 through three focus group interviews and three additional individual interviews. Saturation was reached when no new themes emerged from the interviews. The interviews were transcribed verbatim and analyzed using conventional content analysis. This study ensured the trustworthiness of the data based on criteria including truth value, applicability, consistency, and neutrality.

RESULTS

Four categories emerged: advantages, disadvantages, preferences for peer support activities, and the need for metaverse-based peer support programs. Participants valued peer support activities for exchanging information, nurturing empathy, and encouraging healthy behaviors. Challenges included information confusion, peer conflict, isolation, and stigma. Preferences for group composition, size, and medium varied; however, all participants agreed on the importance of operational guidelines. Participants expected a metaverse-based peer support program to provide safe and enjoyable experiences despite concerns about unfamiliar platforms.

CONCLUSIONS

This study highlights the unique needs and preferences of young breast cancer survivors regarding peer support activities. Well-organized and tailored peer support can significantly enhance their quality of life. These findings provide valuable insights for developing effective metaverse-based peer support programs to meet the needs of young women with breast cancer.

摘要

目的

本研究旨在探讨年轻乳腺癌幸存者参与同伴支持活动的经历以及他们对基于元宇宙的同伴支持项目的需求。

方法

这项定性内容分析研究涉及15名年龄在40岁以下的年轻乳腺癌女性。有目的地选取了在同伴支持活动中有不同经历的参与者。2023年3月,通过三次焦点小组访谈和另外三次个人访谈收集数据。当访谈中没有出现新的主题时,达到了饱和状态。访谈内容逐字转录,并采用常规内容分析法进行分析。本研究基于真值、适用性、一致性和中立性等标准确保了数据的可信度。

结果

出现了四类:优势、劣势、对同伴支持活动的偏好以及对基于元宇宙的同伴支持项目的需求。参与者重视同伴支持活动在信息交流、培养同理心和鼓励健康行为方面的作用。挑战包括信息混乱、同伴冲突、孤立和污名化。对小组组成、规模和媒介的偏好各不相同;然而,所有参与者都认同操作指南的重要性。尽管对不熟悉的平台有所担忧,但参与者期望基于元宇宙的同伴支持项目能提供安全且愉快的体验。

结论

本研究突出了年轻乳腺癌幸存者在同伴支持活动方面的独特需求和偏好。组织良好且量身定制的同伴支持能够显著提高他们的生活质量。这些发现为开发有效的基于元宇宙的同伴支持项目以满足年轻乳腺癌女性的需求提供了宝贵的见解。

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