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本文引用的文献

1
How do young adults with cancer perceive social support? A qualitative study.患癌青年如何看待社会支持?一项定性研究。
J Psychosoc Oncol. 2017 May-Jun;35(3):292-308. doi: 10.1080/07347332.2017.1289290. Epub 2017 Feb 1.
2
Perceived social support and health-related quality of life in AYA cancer survivors and controls.青少年及青年癌症幸存者和对照组的感知社会支持与健康相关生活质量
Psychooncology. 2016 Dec;25(12):1408-1417. doi: 10.1002/pon.4072. Epub 2016 Jan 26.
3
Exploring gender and identity issues among female adolescent and young adults who connect in an anonymous platform.探索在匿名平台上建立联系的女性青少年和年轻成年人中的性别与身份认同问题。
J Health Psychol. 2017 Apr;22(5):548-560. doi: 10.1177/1359105315605657. Epub 2015 Sep 30.
4
Exploring psychosocial support online: a content analysis of messages in an adolescent and young adult cancer community.探索在线心理社会支持:青少年和青年癌症社区信息的内容分析。
Cyberpsychol Behav Soc Netw. 2012 Oct;15(10):555-9. doi: 10.1089/cyber.2012.0138. Epub 2012 Sep 12.
5
"You're too young for this": adolescent and young adults' perspectives on cancer survivorship.“你还太年轻,不该承受这些”:青少年和青年癌症生存者的观点。
J Psychosoc Oncol. 2012;30(2):260-79. doi: 10.1080/07347332.2011.644396.
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Social support and adolescent cancer survivors: A review of the literature.社会支持与青少年癌症幸存者:文献综述
Psychooncology. 2007 Jan;16(1):1-11. doi: 10.1002/pon.1073.
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Checklists for improving rigour in qualitative research: a case of the tail wagging the dog?提高定性研究严谨性的清单:是本末倒置吗?
BMJ. 2001 May 5;322(7294):1115-7. doi: 10.1136/bmj.322.7294.1115.
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Adolescent development.青少年发育
Annu Rev Psychol. 2001;52:83-110. doi: 10.1146/annurev.psych.52.1.83.
9
Emerging adulthood. A theory of development from the late teens through the twenties.新兴成年期。一种从青少年晚期到二十多岁的发展理论。
Am Psychol. 2000 May;55(5):469-80.
10
Self-esteem, depression and anxiety among Swedish children and adolescents on and off cancer treatment.接受和未接受癌症治疗的瑞典儿童及青少年的自尊、抑郁和焦虑状况
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青少年和青年癌症幸存者对家庭和同伴支持的看法的定性研究。

A qualitative study of adolescent and young adult cancer survivors' perceptions of family and peer support.

机构信息

Memorial Sloan Kettering Cancer Center, USA.

St. John's University, USA.

出版信息

J Health Psychol. 2020 Apr;25(5):713-726. doi: 10.1177/1359105318769366. Epub 2018 Apr 24.

DOI:10.1177/1359105318769366
PMID:29687735
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6167207/
Abstract

This qualitative study examined adolescent and young adult survivors' perceptions of support from family and peers. A total of 26 survivors, aged 16-24 years, who had been diagnosed with cancer between the ages of 14 and 18, participated in semi-structured interviews. Three themes emerged for support: practical support, emotional support, and new sense of closeness. For lack of support, two themes emerged: absence during treatment and lack of understanding about appearance changes. These findings emphasize the perceived importance of family and peer support throughout adolescent and young adults' cancer trajectories and indicate a need for interventions to help adolescent and young adult develop and maintain support networks throughout treatment and survivorship.

摘要

本定性研究探讨了青少年和青年癌症幸存者对来自家庭和同龄人的支持的看法。共有 26 名年龄在 16-24 岁之间的幸存者参与了半结构化访谈,他们在 14 至 18 岁之间被诊断出患有癌症。支持方面出现了三个主题:实际支持、情感支持和新的亲密感。由于缺乏支持,出现了两个主题:治疗期间的缺失和对外观变化的不理解。这些发现强调了在青少年和青年癌症轨迹中家庭和同伴支持的感知重要性,并表明需要干预措施来帮助青少年和青年在治疗和生存期间发展和维持支持网络。