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探讨在护理服务中嵌入 iSupport for Dementia 计划时,促进者在支持家庭护理者方面的作用:一项定性研究。

Exploring the role of a facilitator in supporting family carers when embedding the iSupport for Dementia programme in care services: A qualitative study.

机构信息

College of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, Australia.

Caring Future Institutes, Flinders University, Bedford Park, South Australia, Australia.

出版信息

J Clin Nurs. 2023 Oct;32(19-20):7358-7371. doi: 10.1111/jocn.16836. Epub 2023 Jul 21.

DOI:10.1111/jocn.16836
PMID:37477168
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10947559/
Abstract

AIMS

To explore stakeholders' perceptions of a facilitator's role in supporting carers when embedding iSupport for Dementia psychoeducation program, in care services.

METHODS

A qualitative descriptive study design was applied. Data were collected from workshops and interviews with carers of people living with dementia (PLWD)and with health and social care professionals from two tertiary hospitals and two community aged care organisations across three Australian states between October 2021 and March 2022. A thematic analysis was used to analyse data. The COREQ guideline was followed to report our findings.

RESULTS

A total of 30 family carers and 45 health and social care professionals participated in the study. Three main themes and seven subthemes were identified from the data. We described the main themes as (1) the facilitator's role at the time of dementia diagnosis, (2) the facilitator's role throughout the everyday dementia care journey and (3) the facilitator's role during transition moments.

CONCLUSIONS

Caring for family members with dementia is demanding and stressful for carers. Embedding a facilitator-enabled iSupport for Dementia program in hospital and community aged care settings has the potential to mitigate sources of stress associated with care recipient factors, carer factors and care service factors, and improve the health and well-being of carers and those for whom they care.

RELEVANCE TO CLINICAL PRACTICE

Our findings will inform the establishment of iSupport facilitators appointed by dementia care providers in hospital and community care settings and help determine their roles and responsibilities in delivering the iSupport program. Our findings relate to nurse-led and coordinated dementia care in hospital and community aged care settings.

PATIENT OR PUBLIC CONTRIBUTION

This study was co-designed with stakeholders from two aged care organisations and two tertiary hospitals. The study participants were staff employed by these organisations and carers of PLWD who were service users.

摘要

目的

探索利益相关者对在护理服务中嵌入 iSupport 用于痴呆症心理教育计划时,支持照护者的促进者角色的看法。

方法

采用定性描述性研究设计。数据收集于 2021 年 10 月至 2022 年 3 月期间,在澳大利亚三个州的两家三级医院和两家社区老年护理组织中,对有痴呆症患者(PLWD)的家庭照护者以及卫生和社会护理专业人员进行了研讨会和访谈。使用主题分析对数据进行分析。我们遵循 COREQ 指南报告研究结果。

结果

共有 30 名家庭照护者和 45 名卫生和社会护理专业人员参与了研究。从数据中确定了三个主要主题和七个子主题。我们将主要主题描述为:(1)在痴呆症诊断时的促进者角色;(2)在日常痴呆症护理过程中的促进者角色;(3)在过渡时刻的促进者角色。

结论

照顾痴呆症患者的家庭成员对照护者来说是具有挑战性和压力的。在医院和社区老年护理环境中嵌入促进者支持的 iSupport 用于痴呆症计划有潜力减轻与护理接受者因素、照护者因素和护理服务因素相关的压力源,并改善照护者及其照护对象的健康和幸福感。

对临床实践的意义

我们的研究结果将为在医院和社区护理环境中任命 iSupport 促进者提供信息,并帮助确定他们在提供 iSupport 计划中的角色和职责。我们的研究结果与医院和社区老年护理环境中护士主导和协调的痴呆症护理相关。

患者或公众贡献

这项研究是与两家老年护理组织和两家三级医院的利益相关者共同设计的。研究参与者是这些组织的员工以及 PLWD 的家庭照护者,他们是服务使用者。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/da1a/10947559/75b7c4c24da7/JOCN-32-7358-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/da1a/10947559/75b7c4c24da7/JOCN-32-7358-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/da1a/10947559/75b7c4c24da7/JOCN-32-7358-g001.jpg

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本文引用的文献

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Dementia (London). 2022 Aug;21(6):2035-2052. doi: 10.1177/14713012221110003. Epub 2022 Jun 20.
2
Creating 'Partnership in iSupport program' to optimise family carers' impact on dementia care: a randomised controlled trial protocol.创建“iSupport 计划中的合作伙伴关系”以优化家庭护理员对痴呆症护理的影响:一项随机对照试验方案。
BMC Health Serv Res. 2022 Jun 10;22(1):762. doi: 10.1186/s12913-022-08148-2.
3
Effect of depression on caregivers caring for family members living with dementia and other chronic illnesses.
抑郁症对照顾患有痴呆症及其他慢性疾病家庭成员的照料者的影响。
Evid Based Nurs. 2022 Apr 25. doi: 10.1136/ebnurs-2021-103511.
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Optimising diagnosis and post-diagnostic support for people living with dementia: geriatricians' views.优化痴呆患者的诊断和诊断后支持:老年医学专家的观点。
BMC Geriatr. 2022 Feb 19;22(1):143. doi: 10.1186/s12877-022-02814-0.
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Family dynamics in dementia care: A phenomenological exploration of the experiences of family caregivers of relatives with dementia.痴呆症护理中的家庭动态:对痴呆症亲属的家庭照顾者的体验的现象学探索。
J Psychiatr Ment Health Nurs. 2022 Dec;29(6):861-872. doi: 10.1111/jpm.12822. Epub 2022 Feb 2.
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