Agnes Yeni Lufiana Novita, Songwathana Praneed
Faculty of Health Sciences, University of Kadiri, Indonesia.
Faculty of Nursing, Prince of Songkla University, Thailand.
Belitung Nurs J. 2021 Oct 28;7(5):409-417. doi: 10.33546/bnj.1600. eCollection 2021.
Although advanced treatment and accessibility of HIV/AIDS prevention and care have been increased, HIV-related stigma persists in the Indonesian community, especially among HIV-negative Muslim wives in a serodiscordant relationship. Therefore, understanding their coping strategies of the stigma is a necessity.
The study aimed to explore HIV-related stigma and coping strategies of HIV-negative Muslim wives in a serodiscordant relationship.
A qualitative study was conducted among seven HIV-negative Muslim wives in a serodiscordant relationship who experienced stigma. Data were collected by in-depth interview, and content analysis was used for data analysis.
Three themes emerged from the data. The first theme was the meaning of HIV/AIDS to Muslim wives, including perceiving HIV as a (immoral women) disease, perceiving HIV causes death, assuming herself as a carrier, and presuming HIV is less harmful than Diabetes Mellitus. The second theme was HIV-related stigma experiences, including being shunned by people, rejected by a midwife, and humiliated by a health worker. Finally, the third theme was coping strategies with the stigma, consisting of hiding the husband's HIV-positive status from the neighbors, disclosing HIV-positive status to a selective person, seeking support from the peer group, and strengthening the relationship among family members.
HIV/AIDS-related stigma affected people living with HIV/AIDS and their families, and it becomes a barrier to HIV/AIDS reduction programs in the marriage relationship. These findings will be beneficial to nurses and other health professionals to develop stigma reduction interventions related to HIV/AIDS.
尽管艾滋病防治和关怀的先进治疗方法及可及性有所提高,但在印度尼西亚社区,与艾滋病相关的耻辱感依然存在,尤其是在血清学不一致关系中,艾滋病毒呈阴性的穆斯林妻子当中。因此,了解她们应对耻辱感的策略很有必要。
本研究旨在探讨血清学不一致关系中艾滋病毒呈阴性的穆斯林妻子与艾滋病相关的耻辱感及应对策略。
对七名处于血清学不一致关系且经历过耻辱感的艾滋病毒呈阴性的穆斯林妻子进行了一项定性研究。通过深入访谈收集数据,并采用内容分析法进行数据分析。
数据中出现了三个主题。第一个主题是艾滋病对穆斯林妻子的意义,包括将艾滋病视为(不道德女性)疾病、认为艾滋病会导致死亡、假定自己是携带者以及认为艾滋病比糖尿病危害小。第二个主题是与艾滋病相关的耻辱经历,包括被人回避、被助产士拒绝以及被医护人员羞辱。最后,第三个主题是应对耻辱感的策略,包括向邻居隐瞒丈夫的艾滋病毒阳性状况、向特定的人披露艾滋病毒阳性状况、寻求同伴群体的支持以及加强家庭成员之间的关系。
与艾滋病相关的耻辱感影响着艾滋病患者及其家人,并且成为婚姻关系中艾滋病防治项目的障碍。这些研究结果将有助于护士和其他卫生专业人员制定与艾滋病相关的减少耻辱感干预措施。