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纽约市异性血清学不一致关系中HIV阴性成年人的HIV污名经历与管理

The experience and management of HIV stigma among HIV-negative adults in heterosexual serodiscordant relationships in New York City.

作者信息

Siegel Karolynn, Meunier Étienne, Lekas Helen-Maria

机构信息

a Department of Sociomedical Sciences , Columbia University Mailman School of Public Health , New York , NY , USA.

b Nathan Kline Institute for Psychiatric Research , Orangeburg , NY , USA.

出版信息

AIDS Care. 2018 Jul;30(7):871-878. doi: 10.1080/09540121.2018.1441971. Epub 2018 Feb 19.

Abstract

Despite treatment advances that have improved the health and life expectancy of HIV-positive people and contribute to the prevention of HIV transmission, HIV stigma is still frequently experienced by HIV-infected individuals and those close to them. This study investigated the types of HIV-related stigma experienced by HIV-negative adults in serodiscordant heterosexual relationships when their partner's HIV-positive status was revealed to family and friends and their strategies to manage such stigma. In-depth interviews were conducted in New York City with 56 men and 44 women who were HIV negative and had been in a relationship for at least six months with an HIV-positive partner of the opposite sex. Those who had disclosed the HIV status of their partner to family or friends experienced four main types of stigmatizing behaviours: distancing (avoidance of the participant or his/her partner for fear of infection), depreciation of the partner (being told their partner is not worthy of them), violation of privacy (people spreading the information that the partner is HIV positive), or accusations (being told that it was wrong to be in a relationship with HIV-positive people or to try to conceive with them). Participants described four main ways of managing actual or anticipated stigma: secrecy (not disclosing the HIV status of their partner to anyone), avoidance (breaking ties with people who held stigmatizing views), seeking support from their partner or the HIV-positive community (e.g., HIV-related organizations or their partner's family or friends), or education (informing family or friends about HIV treatment and prevention). Findings show that HIV-related "courtesy" stigma is frequently experienced by HIV-negative people in serodiscordant relationships but often can be managed. Offering support to individuals in serodiscordant relationships can improve the quality of life of HIV-positive people and their HIV-negative partners and potentially reduce HIV stigma.

摘要

尽管治疗方面的进展改善了艾滋病毒呈阳性者的健康状况和预期寿命,并有助于预防艾滋病毒传播,但艾滋病毒感染者及其身边的人仍经常遭受艾滋病毒污名化。本研究调查了血清学不一致的异性恋关系中,艾滋病毒呈阴性的成年人在其伴侣的艾滋病毒阳性状态告知家人和朋友后所经历的与艾滋病毒相关的污名类型,以及他们应对此类污名的策略。在纽约市对56名男性和44名女性进行了深入访谈,这些人艾滋病毒呈阴性,且与一名艾滋病毒呈阳性的异性伴侣保持关系至少六个月。那些向家人或朋友透露其伴侣艾滋病毒状况的人经历了四种主要的污名化行为:疏远(因害怕感染而回避参与者或其伴侣)、贬低伴侣(被告知其伴侣配不上他们)、侵犯隐私(人们传播其伴侣艾滋病毒呈阳性的信息)或指责(被告知与艾滋病毒呈阳性的人恋爱或试图与其生育是错误的)。参与者描述了应对实际或预期污名的四种主要方式:保密(不向任何人透露其伴侣的艾滋病毒状况)、回避(与持有污名化观点的人断绝关系)、向其伴侣或艾滋病毒阳性群体寻求支持(如与艾滋病毒相关的组织或其伴侣的家人或朋友)或教育(向家人或朋友宣传艾滋病毒治疗和预防知识)。研究结果表明,血清学不一致关系中的艾滋病毒呈阴性者经常遭受与艾滋病毒相关的“礼貌性”污名,但通常是可以应对的。为血清学不一致关系中的个人提供支持可以改善艾滋病毒呈阳性者及其艾滋病毒呈阴性伴侣的生活质量,并有可能减少艾滋病毒污名。

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Exploring the concept of HIV-related stigma.探索与艾滋病相关的污名化概念。
Nurs Forum. 2012 Jul-Sep;47(3):153-65. doi: 10.1111/j.1744-6198.2011.00235.x.

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