Faculty of Nursing, Avondale University College, Sydney, NSW, Australia.
Brain Injury Rehabilitation Research Group, Ingham Institute of Applied Medical Research, Sydney, NSW, Australia.
NeuroRehabilitation. 2020;46(1):41-52. doi: 10.3233/NRE-192946.
Stroke is the leading cause of disability in Australia and the third-leading cause of disability worldwide and a significant burden on caregivers.
To map the extent, range and nature of the literature investigating spirituality and resilience among family caregivers of survivors of stroke.
A scoping review.
Six studies were identified, conducted in the United States, United Kingdom, China and Turkey. These included two quantitative, one experimental and three qualitative designs. No studies linked spirituality to resilience. For the qualitative studies, spirituality was the primary focus of one, and the secondary focus of two others. Qualitative data reflected the lived experience of caregivers drawing upon spirituality to help cope with the burden of caregiving. For the two quantitative studies, spirituality was measured as a secondary focus and showed no significant links between spirituality or adjustment in caregivers. The one experimental study comprised a psycho-educational intervention focused on building resilience, finding a significant increase in social support not reflected in a matched control group. Clinical implications suggested the need for strength-based interventions, including spiritual needs and religious beliefs of the family caregiver.
Spirituality and resilience following stroke are essential factors in caregiver adjustment following stroke. Further research with a focus on causality and the link between spirituality, resilience and adjustment in this population is needed.
中风是澳大利亚乃至全球导致残疾的首要原因，也是全球导致残疾的第三大原因，同时给照顾者带来了巨大的负担。
绘制调查中风幸存者家属的灵性和韧性的文献的范围、范围和性质。
范围综述。
确定了六项研究，这些研究在美国、英国、中国和土耳其进行。其中包括两项定量研究、一项实验研究和三项定性设计研究。没有研究将灵性与韧性联系起来。对于定性研究，灵性是其中一项研究的主要关注点，另外两项研究的次要关注点。定性数据反映了照顾者的生活经历，他们借助灵性来帮助应对照顾的负担。对于两项定量研究，灵性是次要关注点，并且在照顾者的灵性或适应方面没有显示出显著的联系。唯一的一项实验研究包括一个以建立韧性为重点的心理教育干预，发现社会支持显著增加，但在匹配的对照组中没有反映出来。临床意义表明需要基于优势的干预措施，包括照顾者的精神需求和宗教信仰。
中风后的灵性和韧性是中风后照顾者适应的重要因素。需要进一步进行以因果关系为重点的研究，以及在这一人群中灵性、韧性和适应之间的联系。
