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照顾新冠肺炎患儿的亲身经历:一项现象学研究。

Lived experience caring for a child with Covid-19 disease: A phenomenological study.

作者信息

Noghabi Fariba Asadi, Yousefi Mohsen, Golalipour Elnaz, Zarei Aref, Yousefi Hadi, Sadeghi Tahereh

机构信息

Mother and Child Welfare Research Center, Department of Nursing, School of Nursing and Midwifery, Hormozgan University of Medical Sciences, Bandar Abbas, Iran.

School of Medicine, Shahid Beheshti University of Medical Science, Tehran, Iran.

出版信息

Heliyon. 2023 Jul 20;9(8):e18481. doi: 10.1016/j.heliyon.2023.e18481. eCollection 2023 Aug.

DOI:10.1016/j.heliyon.2023.e18481
PMID:37533988
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10392080/
Abstract

BACKGROUND

Caregivers of COVID-19 patients, including mothers with an infected child, are affected by adverse physical and psychological effects. Since mothers perform an important role in caring for a child with Covid-19, explaining their challenges and experiences positively affects the health conditions of children and society, in general.

AIM

This study aimed to explain mothers' experiences with children diagnosed with COVID-19, who were referred to Bandar Abbas Children's Hospital.

METHOD

The present study was qualitative and used the Van-Manen method. The statistical population included 13 mothers with children hospitalized for coronary heart disease and COVID-19, who were selected by purposive sampling. Semi-structured interviews were implemented to collect data until saturation. Data analysis was performed using MAXQDA 10 software. Lincoln and Guba's criteria were used to evaluate the data's accuracy and strength.

RESULTS

The mean age of mothers participating in the study was 37.92 ± 4.87. On the other hand, the mean age of children was 5.15 ± 2.07 years. Three main themes and 13 sub-themes were extracted from the data analysis. The main themes were "Inability to Caring", "Mental and Physical drain" and "Conflict of Roles and Responsibilities". In this study, when a child develops COVID-19 disease, the mother experiences a series of negative emotions, which lead to feelings of helplessness and inability to care for the child.

CONCLUSION

Mental and physical manifestations strains were the most important issues that the mothers experienced. The majority of the participants need psychological support to cope with the disease. Therefore, it is recommended to make a proper design to psychologically and socially support these mothers, while alleviating the physical manifestations of their children's disease.

摘要

背景

新冠病毒病(COVID-19)患者的照料者,包括孩子感染的母亲,会受到不良的生理和心理影响。由于母亲在照料感染新冠病毒病的孩子方面发挥着重要作用,总体而言,阐释她们面临的挑战和经历会对孩子及社会的健康状况产生积极影响。

目的

本研究旨在阐释转诊至阿巴斯港儿童医院的、其孩子被诊断为感染新冠病毒病的母亲们的经历。

方法

本研究为定性研究,采用了范曼方法。统计总体包括13位其孩子因冠心病和新冠病毒病住院的母亲,她们通过目的抽样法被选取。实施半结构式访谈以收集数据,直至达到饱和状态。使用MAXQDA 10软件进行数据分析。采用林肯和古巴的标准来评估数据的准确性和可靠性。

结果

参与研究的母亲的平均年龄为37.92±4.87岁。另一方面,孩子的平均年龄为5.15±2.07岁。通过数据分析提取出了三个主要主题和13个子主题。主要主题为“照料无能”“身心耗竭”和“角色与责任冲突”。在本研究中,当孩子患上新冠病毒病时,母亲会经历一系列负面情绪,这会导致无助感以及无法照料孩子的感觉。

结论

身心表现的压力是母亲们所经历的最重要问题。大多数参与者需要心理支持来应对疾病。因此,建议进行适当设计,以便在心理和社会层面支持这些母亲,同时减轻其孩子疾病的身体表现。

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