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一项关于津巴布韦农村和城市地区部分癌症患者所经历的癌症污名化现象的现象学研究。

A phenomenological study on experiences of cancer stigma amongst selected people living with cancer in rural and urban Zimbabwe.

作者信息

Mandizadza Enock, Moyo Stanzia

机构信息

Community and Social Development, University of Zimbabwe, Harare, Harare, 263, Zimbabwe.

Demography Settlement and Development, University of Zimbabwe, Harare, Harare, 263, Zimbabwe.

出版信息

AAS Open Res. 2021 Oct 7;4:48. doi: 10.12688/aasopenres.13282.1. eCollection 2021.

Abstract

Cancer is a highly stigmatized illness associated with profound adverse impact on communities, families and diagnosed individuals. Notwithstanding extensive theorizing since Erving Goffman's classical contributions, health stigma is well explicated in context-specific and situated analysis. The current study explored the manifestations of self and enacted stigma among 20 selected people diagnosed with cancer from rural and urban Zimbabwe, who sought quaternary level of health care services in the capital, Harare. Phenomenological methodology was enlisted to capture intimate expressions of stigma as expressed about, and by people diagnosed with cancer. Data collection methods used includes semi-structured interviews, key informant interviews and focus group discussions. A semi-structured in-depth interview guide, focus group discussion guide and a key informant interview guide were the tools used to collect the data. The study identified five themes of stigma, indicating pronounced, complex and multiple catalogues of stigma embedded in the existing socio-cultural milieu. This study stands to offer invaluable conceptual schemas and empirical insights on health-related stigma, and may aid in nursing and in the design of educational programs meant to combat health stigma.

摘要

癌症是一种备受污名化的疾病,对社区、家庭和确诊患者有着深远的负面影响。尽管自欧文·戈夫曼做出经典贡献以来已有大量理论探讨,但健康污名在特定情境和具体分析中才能得到充分阐释。本研究探讨了津巴布韦农村和城市地区20名确诊癌症患者的自我污名和表现出的污名,这些患者在首都哈拉雷寻求四级医疗服务。采用现象学方法来捕捉癌症确诊患者所表达的以及关于他们的污名的亲密表达。使用的数据收集方法包括半结构化访谈、关键 informant 访谈和焦点小组讨论。半结构化深度访谈指南、焦点小组讨论指南和关键 informant 访谈指南是用于收集数据的工具。该研究确定了污名的五个主题,表明现有社会文化环境中存在明显、复杂和多重的污名类别。本研究有望提供关于健康相关污名的宝贵概念框架和实证见解,并可能有助于护理工作以及旨在对抗健康污名的教育项目设计。 (注:原文中“key informant”未给出准确中文释义,可译为“关键信息提供者”等,这里保留英文以便理解)

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Identity threat and stigma in cancer patients.癌症患者的身份威胁与污名化
Health Psychol Open. 2014 Sep 25;1(1):2055102914552281. doi: 10.1177/2055102914552281. eCollection 2014 Jul.
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Stigma: a social, cultural and moral process.污名:一种社会、文化和道德过程。
J Epidemiol Community Health. 2009 Jun;63(6):418-9. doi: 10.1136/jech.2008.084277.

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