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为小儿炎症性肠病患者构建自我管理工具包:引入 Resilience 5。

Building a Self-Management Toolkit for Patients with Pediatric Inflammatory Bowel Disease: Introducing the resilience 5.

机构信息

Department of Gastroenterology, Hepatology, and Nutrition, Hospital for Sick Children, 555 University Avenue, Toronto, Onatrio, Canada.

Icahn School of Medicine at Mount Sinai, 1 Gustave L. Levy Place, New York, NY, USA.

出版信息

Gastroenterol Clin North Am. 2023 Sep;52(3):599-608. doi: 10.1016/j.gtc.2023.05.005. Epub 2023 Jun 20.

Abstract

Transition from pediatric to adult health care is a complex process that calls for complex interventions and collaboration between health care teams and families. However, many inflammatory bowel disease (IBD) clinical care teams do not have the resources to implement rigorous transition programs for youth. This review provides a description of the Resilience5: self-efficacy, disease acceptance, self-regulation, optimism, and social support. The Resilience5 represents teachable skills to support IBD self-management, offset disease interfering behaviors, and build resilience in adolescents and young adults transitioning to adult health care systems. These skills can also be encouraged and reinforced during routine IBD clinical care.

摘要

从儿科到成人保健的过渡是一个复杂的过程,需要医疗保健团队和家庭之间进行复杂的干预和协作。然而,许多炎症性肠病(IBD)临床护理团队没有资源为年轻人实施严格的过渡计划。本综述描述了 Resilience5:自我效能、疾病接受度、自我调节、乐观和社会支持。Resilience5 代表了可教授的技能,可以支持 IBD 自我管理,抵消疾病干扰行为,并在过渡到成人保健系统的青少年和年轻人中建立韧性。这些技能也可以在常规 IBD 临床护理中得到鼓励和加强。

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