Zajdel Melissa, Keller Krystyna R, Mountcastle Lindsey, Koehly Laura M
Social Network Methods Section, Social and Behavioral Research Branch, National Human Genome Research Institute.
Soc Networks. 2023 Jul;74:236-244. doi: 10.1016/j.socnet.2023.05.002. Epub 2023 May 9.
Communal coping may benefit caregivers, but most communal coping research focuses on dyads. Using an egocentric network design, we examine caregivers' we-talk-a linguistic marker of shared responsibility-and caregiver reports of 1) network member involvement in collaborative care roles and 2) met/unmet expectations across typically developing and rare disease contexts. We-talk was linked to involvement in direct care and support, but links of we-talk to decision-making varied based on network member closeness; we-talk was linked to meeting expectations for decision-making only. There were no differences across context, suggesting shared responsibility is linked to collaborative roles across caregiving contexts.
共同应对可能对照顾者有益,但大多数共同应对研究都集中在二元组上。我们采用以自我为中心的网络设计,研究照顾者的“我们”式谈话(一种共同责任的语言标志)以及照顾者对以下两方面的报告:1)网络成员参与协作护理角色的情况;2)在典型发育和罕见病背景下预期是否得到满足。“我们”式谈话与直接护理和支持的参与度相关,但“我们”式谈话与决策的关联因网络成员的亲密度而异;“我们”式谈话仅与决策预期的满足情况相关。不同背景之间没有差异,这表明共同责任与不同护理背景下的协作角色相关。