The Miami Project to Cure Paralysis, University of Miami Miller School of Medicine, Miami, FL, United States.
Department of Neurological Surgery, University of Miami Miller School of Medicine, Miami, FL, United States.
Front Public Health. 2023 Jul 24;11:1197944. doi: 10.3389/fpubh.2023.1197944. eCollection 2023.
Many people with spinal cord injury (SCI) develop chronic pain, including neuropathic pain. Unfortunately, current treatments for this condition are often inadequate because SCI-associated neuropathic pain is complex and depends on various underlying mechanisms and contributing factors. Multimodal treatment strategies including but not limited to pharmacological treatments, physical rehabilitation, cognitive training, and pain education may be best suited to manage pain in this population. In this study, we developed an educational resource named the based on published pain literature, and direct stakeholder input, including people living with SCI and chronic pain, their significant others, and healthcare providers with expertise in SCI. The was then 1) systematically evaluated by stakeholders regarding its content, comprehensibility, and format using qualitative interviews and thematic analysis, and 2) modified based on their perspectives. The final resource is a comprehensive guide for people with SCI and their significant others or family members that is intended to increase health literacy and facilitate communication between SCI consumers and their healthcare providers. Future work will quantitatively validate the in a large SCI sample.
许多脊髓损伤 (SCI) 患者会出现慢性疼痛，包括神经性疼痛。不幸的是，目前针对这种疾病的治疗方法往往不够有效，因为 SCI 相关的神经性疼痛很复杂，取决于各种潜在的机制和促成因素。包括药物治疗、物理康复、认知训练和疼痛教育在内的多模式治疗策略可能最适合管理该人群的疼痛。在这项研究中，我们根据已发表的疼痛文献和直接利益相关者的投入，包括患有 SCI 和慢性疼痛的患者及其重要他人，以及在 SCI 方面具有专业知识的医疗保健提供者，开发了一种名为 的教育资源。然后，1）使用定性访谈和主题分析，由利益相关者对其内容、可理解性和格式进行系统评估，以及 2）根据他们的观点进行修改。最终的资源是一份针对 SCI 患者及其重要他人或家庭成员的综合指南，旨在提高健康素养并促进 SCI 消费者与其医疗保健提供者之间的沟通。未来的工作将在一个大型 SCI 样本中对 进行定量验证。
