Department of Psychiatry, University of California San Diego, La Jolla, California, USA.
Department of Psychology, University of Texas at Austin, Austin, Texas, USA.
J Spinal Cord Med. 2020 Jan;43(1):122-125. doi: 10.1080/10790268.2018.1508953. Epub 2018 Aug 21.
Caregivers of patients with spinal cord injury (SCI) have increased risk of depression, anxiety, and diminished quality of life. Unmet expectations for recovery may contribute to poorer outcomes. Prospective, longitudinal observation study. Trauma/Critical care ICU at baseline, telephone for follow-ups.: Caregivers of patients with SCI ( = 13). None. Expectations for recovery were assessed across four primary domains identified in a review of the literature including: pain severity, level of engagement in social/recreational activities, sleep quality, and ability to return to work/school. Caregivers' forecasts of future recovery were compared to later perceived actual recovery. At three months, 75% of caregivers had unmet expectations for social engagement recovery, 50% had unmet expectations for pain decrease, and 42% had unmet expectations for sleep improvement and resuming work. Rates of unmet expectations were similar at six months, with 70% of caregivers reporting unmet expectations for social engagement recovery, 50% with unmet expectations for pain decrease, and 40% with unmet expectations for sleep improvement. Unmet caregiver expectations for recovery could pose a risk for caregiver recovery and adjustment. Our results show that caregiver expectations merit further investigation for their link with caregiver mental health.
脊髓损伤 (SCI) 患者的护理人员患抑郁症、焦虑症和生活质量下降的风险增加。对康复的期望未得到满足可能导致预后较差。前瞻性、纵向观察研究。创伤/重症监护 ICU 为基线，电话随访：SCI 患者的护理人员（ = 13）。无。在文献综述中确定了四个主要领域来评估康复期望，包括：疼痛严重程度、参与社会/娱乐活动的程度、睡眠质量和重返工作/学校的能力。护理人员对未来康复的预测与后来感知到的实际康复进行了比较。在三个月时，75%的护理人员对社会参与康复的期望未得到满足，50%对疼痛减轻的期望未得到满足，42%对睡眠改善和恢复工作的期望未得到满足。六个月时未满足的期望率相似，70%的护理人员报告对社会参与康复的期望未得到满足，50%对疼痛减轻的期望未得到满足，40%对睡眠改善的期望未得到满足。护理人员对康复的期望未得到满足可能会对护理人员的康复和适应构成风险。我们的结果表明，护理人员的期望值得进一步研究，以了解其与护理人员心理健康的关系。
