Hutchinson Institute for Cancer Outcomes Research, Fred Hutchinson Cancer Center, Seattle, WA, United States.
Department of Radiology, University of Michigan Medical Center, Ann Arbor, MI, United States.
JNCI Cancer Spectr. 2023 Aug 31;7(5). doi: 10.1093/jncics/pkad055.
Cancer-related financial hardship is a side effect of cancer diagnosis and treatment, and affects both patients and caregivers. Although many oncology clinics have increased financial navigation services, few have resources to proactively provide financial counseling and assistance to families affected by cancer before financial hardship occurs. As part of an ongoing randomized study testing a proactive financial navigation intervention, S1912CD, among sites of the National Cancer Institute Community Oncology Research Program (NCORP), we conducted a baseline survey to learn more about existing financial resources available to patients and caregivers.
The NCORP sites participating in the S1912CD study completed a required 10-question survey about their available financial resources and an optional 5-question survey that focused on financial screening and navigation workflow and challenges prior to starting recruitment. The proportion of NCORP sites offering financial navigation services was calculated and responses to the optional survey were reviewed to determine current screening and navigation practices and identify any challenges.
Most sites (96%) reported offering financial navigation for cancer patients. Sites primarily identified patients needing financial assistance through social work evaluations (78%) or distress screening tools (76%). Sites revealed challenges in addressing financial needs at the outset and through diagnosis, including lack of proactive screening and referral to financial navigation services as well as staffing challenges.
Although most participating NCORP sites offer some form of financial assistance, the survey data enabled identification of gaps and challenges in providing services. Utilizing community partners to deliver comprehensive financial navigation guidance to cancer patients and caregivers may help meet needs while reducing site burden.
癌症相关的经济困难是癌症诊断和治疗的副作用,影响患者和护理人员。尽管许多肿瘤学诊所增加了财务导航服务,但很少有资源在经济困难发生之前主动向受癌症影响的家庭提供财务咨询和援助。作为国家癌症研究所社区肿瘤学研究计划(NCORP)正在进行的一项测试主动财务导航干预措施 S1912CD 的随机研究的一部分,我们进行了基线调查,以了解更多有关患者和护理人员可用的现有财务资源的信息。
参与 S1912CD 研究的 NCORP 站点完成了一项关于其可用财务资源的 10 个问题的强制性调查,以及一项关于财务筛选和导航工作流程以及在开始招募之前的挑战的可选 5 个问题的调查。计算了提供财务导航服务的 NCORP 站点的比例,并审查了对可选调查的答复,以确定当前的筛选和导航实践,并确定任何挑战。
大多数站点(96%)报告为癌症患者提供财务导航服务。站点主要通过社会工作评估(78%)或困扰筛选工具(76%)确定需要经济援助的患者。站点在开始和通过诊断解决财务需求方面面临挑战,包括缺乏主动筛选和转介至财务导航服务以及人员配备挑战。
尽管大多数参与的 NCORP 站点提供某种形式的经济援助,但调查数据能够确定提供服务方面的差距和挑战。利用社区合作伙伴为癌症患者和护理人员提供全面的财务导航指导可能有助于满足需求,同时减轻站点负担。