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英国专科体重管理服务接收与提供方面患者及工作人员体验的质性探索

A Qualitative Exploration of Patient and Staff Experiences of the Receipt and Delivery of Specialist Weight Management Services in the UK.

作者信息

Watkins Ross, Swancutt Dawn, Alexander Mia, Moghadam Shokraneh, Perry Steve, Dean Sarah, Sheaff Rod, Pinkney Jonathan, Tarrant Mark, Lloyd Jenny

机构信息

University of Exeter Medical School, St Luke's Campus, Heavitree Road, Exeter, EX1 2LU, UK.

University of Plymouth, Plymouth, PL4 8AA, Devon, UK.

出版信息

Patient. 2023 Nov;16(6):625-640. doi: 10.1007/s40271-023-00644-9. Epub 2023 Aug 12.

Abstract

BACKGROUND

Addressing the increasing prevalence of obesity is a global public health priority. Severe obesity (body mass index > 40) reduces life expectancy, due to its association with people developing complications (e.g. diabetes, cancer, cardiovascular disease), and greatly impairs quality of life. The National Health Service (NHS) in the UK provides specialist weight management services (SWMS) for people with severe obesity, but key uncertainties remain around patient access to and engagement with weight management services, as well as pathways beyond the service.

METHODS

In this multiple methods study, using online forum data and semi-structured interviews, stakeholders' experiences of delivering and receiving SWMS were explored. Using the web search engine Google with keywords and web address (URL) identifiers, relevant public online platforms were sourced with snowball sampling and search strings used to identify threads related to people's experiences of accessing SWMS (n = 57). Interviews were conducted with 24 participants (nine patients, 15 staff), and data from all sources were analysed thematically using the framework approach.

RESULTS

Six themes related to access to and engagement with SWMS emerged during data analysis: (1) making the first move, (2) uncertainty and confusion, (3) resource issues, (4) respect and understanding, (5) mode of delivery, and (6) desire for ongoing support.

CONCLUSION

There is a mixed and varied picture of SWMS provision across the UK. The service offered is based on local clinical decision making and available resources, resulting in a range of patient experiences and perspectives. Whilst service capacity issues and patient anxiety were seen as barriers to accessing care, peer support and positive clinical and group interactions (connectedness between individuals) were considered to increase engagement.

摘要

背景

应对日益普遍的肥胖问题是全球公共卫生的重点。重度肥胖(体重指数>40)会缩短预期寿命,因为它与人们出现并发症(如糖尿病、癌症、心血管疾病)有关,还会严重损害生活质量。英国国家医疗服务体系(NHS)为重度肥胖患者提供专科体重管理服务(SWMS),但在患者获得并参与体重管理服务以及服务之外的途径方面,仍存在关键的不确定性。

方法

在这项多方法研究中,通过在线论坛数据和半结构化访谈,探索了利益相关者提供和接受SWMS的经历。使用网络搜索引擎谷歌,通过关键词和网址标识符,采用滚雪球抽样法获取相关公共在线平台,并使用搜索字符串识别与人们获取SWMS经历相关的主题帖(n = 57)。对24名参与者(9名患者、15名工作人员)进行了访谈,并使用框架法对所有来源的数据进行了主题分析。

结果

数据分析过程中出现了六个与获取和参与SWMS相关的主题:(1)迈出第一步,(2)不确定性和困惑,(3)资源问题,(4)尊重和理解,(5)提供方式,(6)对持续支持的渴望。

结论

英国各地提供SWMS的情况参差不齐。所提供的服务基于当地的临床决策和可用资源,导致患者有一系列不同的经历和观点。虽然服务能力问题和患者焦虑被视为获得护理的障碍,但同伴支持以及积极的临床和群体互动(个体之间的联系)被认为能提高参与度。

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