Yi You Gyoung, Jung Se Hee, Bang Moon Suk
Department of Rehabilitation Medicine, Seoul National University Hospital, Seoul University College of Medicine, Seoul, Korea.
Department of Rehabilitation Medicine, Seoul National University Boramae Medical Center, Seoul, Korea.
Ann Rehabil Med. 2019 Jun;43(3):241-249. doi: 10.5535/arm.2019.43.3.241. Epub 2019 Jun 28.
The population of adults diagnosed with cerebral palsy (CP) is increasing along with the survival rate of children born with the disability. Adults with CP need health services for the continued monitoring and management of their condition. Moreover, the development of additional health problems in adulthood increases the need for ongoing access to health services. Adults with CP manifest a higher rate of chronic health conditions and eventual decline in strength and functional reserve, deterioration in physical activity, increased risk of musculoskeletal complications, and gradual changes in swallowing ability. They are also reported to exhibit difficulty engaging socially and have a low health-related quality of life (QOL). However, there are a large number of adults with CP who cannot access medical services adequately and are therefore not effectively treated. To overcome these apparent challenges, we need to fully comprehend the healthcare needs of adults with CP to develop adultfocused health services. Further research is needed regarding the impact of physical activity, nutrition, sarcopenia, myeloradiculopathy, and swallowing function on QOL.
随着脑瘫(CP)患儿存活率的提高,被诊断患有脑瘫的成年人口数量也在增加。患有脑瘫的成年人需要医疗服务来持续监测和管理他们的病情。此外,成年后出现的其他健康问题增加了持续获得医疗服务的需求。患有脑瘫的成年人表现出更高的慢性健康状况发生率,力量和功能储备最终下降,身体活动能力恶化,肌肉骨骼并发症风险增加,吞咽能力逐渐变化。据报道,他们在社交方面也存在困难,与健康相关的生活质量(QOL)较低。然而,有大量患有脑瘫的成年人无法充分获得医疗服务,因此得不到有效治疗。为了克服这些明显的挑战,我们需要充分了解患有脑瘫的成年人的医疗保健需求,以开发以成年人为重点的医疗服务。关于身体活动、营养、肌肉减少症、脊髓神经根病和吞咽功能对生活质量的影响,还需要进一步研究。