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本文引用的文献

1
CDLQI-based Assessment of Skin Disorders Among Children: A Study from Northern India.基于儿童皮肤病生活质量指数(CDLQI)的评估:来自印度北部的一项研究。
Indian J Dermatol. 2021 Nov-Dec;66(6):704. doi: 10.4103/ijd.ijd_807_20.
2
Psychodermatology of acne: Psychological aspects and effects of acne vulgaris.痤疮的心理皮肤病学:寻常痤疮的心理层面及影响
J Cosmet Dermatol. 2021 Apr;20(4):1080-1083. doi: 10.1111/jocd.13765. Epub 2020 Oct 23.
3
Impact of Atopic Dermatitis in Adolescents and their Parents: A French Study.青少年特应性皮炎对青少年及其父母的影响:一项法国研究。
Acta Derm Venereol. 2020 Oct 20;100(17):adv00294. doi: 10.2340/00015555-3653.
4
Quality of Life of Cohabitants of People Living with Acne.痤疮患者同居者的生活质量
Acta Derm Venereol. 2020 Oct 14;100(17):adv00290. doi: 10.2340/00015555-3636.
5
Impact of Atopic Dermatitis and Chronic Hand Eczema on Quality of Life Compared With Other Chronic Diseases.与其他慢性疾病相比,特应性皮炎和慢性手部湿疹对生活质量的影响。
Dermatitis. 2020 May/Jun;31(3):178-184. doi: 10.1097/DER.0000000000000598.
6
Update on Atopic Dermatitis: Diagnosis, Severity Assessment, and Treatment Selection.特应性皮炎最新进展:诊断、严重程度评估及治疗选择
J Allergy Clin Immunol Pract. 2020 Jan;8(1):91-101. doi: 10.1016/j.jaip.2019.06.044. Epub 2019 Aug 29.
7
Quality-of-Life Research in Acne Vulgaris: Current Status and Future Directions.痤疮患者生活质量研究:现状与未来方向。
Am J Clin Dermatol. 2019 Aug;20(4):527-538. doi: 10.1007/s40257-019-00438-6.
8
The Evolution of Quality of Life Assessment and Use in Dermatology.《皮肤病学中生活质量评估及应用的演变》。
Dermatology. 2019;235(3):167-174. doi: 10.1159/000496923. Epub 2019 Mar 29.
9
The impact of pediatric skin disease on self-esteem.儿科皮肤病对自尊的影响。
Int J Womens Dermatol. 2017 Dec 12;4(1):27-31. doi: 10.1016/j.ijwd.2017.11.002. eCollection 2018 Mar.
10
Oxidative stress and psychiatric morbidity in patients with facial acne.面部痤疮患者的氧化应激与精神疾病发病率
J Cosmet Dermatol. 2018 Apr;17(2):203-208. doi: 10.1111/jocd.12366. Epub 2017 Jun 20.

儿科皮肤病对儿童及家长生活质量的影响。

Impact of Pediatric Dermatologic Conditions on Child and Parent Quality of Life.

作者信息

Min Mildred, Malhi Jasminder K, Chambers Cindy J, Sivamani Raja

机构信息

Dermatology, California Northstate University College of Medicine, Elk Grove, USA.

Anesthesiology, California Northstate University College of Medicine, Elk Grove, USA.

出版信息

Cureus. 2023 Jul 18;15(7):e42068. doi: 10.7759/cureus.42068. eCollection 2023 Jul.

DOI:10.7759/cureus.42068
PMID:37602071
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10434292/
Abstract

Dermatologic conditions can confer a negative effect on pediatric patients and their caretakers. We aim to study the relationship between child and parent quality of life among various dermatoses to further understand the psychosocial impacts of dermatologic disease. We conducted a cross-sectional study of 100 pediatric patients (aged 7-18) and 98 parents who presented to the Pacific Skin Institute, Sacramento, CA, from November 2020 to January 2022. Patients and their parents were evaluated using the Children's Dermatology Life Quality Index (CDLQI) and Family Dermatology Life Quality Index (FDLQI). The maximum score for both indices was 30, with a higher score indicating greater impairment on quality of life. From all the patients and parents identified for various dermatoses, FDLQI scores (mean, 7.8; n = 98) exceeded CDLQI scores (mean, 5.8; n = 100) in nearly every condition. Acne was the only diagnosis with greater CDLQI scores (mean, 9.2; n = 43) than FDLQI scores (mean, 8.8; n = 42). Psoriasis had the greatest difference between FDLQI scores (mean, 10.4; n = 9) and CDLQI scores (mean, 5.9; n = 9). Our study found that parents of children with dermatologic conditions often experience a greater impairment on quality of life compared to the patient. This is likely because parents are highly involved in the management of their child's condition and are burdened with the costs associated with dermatoses. These findings call for a more holistic evaluation by clinicians and the expansion of resources for patients and their parents.

摘要

皮肤病会对儿科患者及其照料者产生负面影响。我们旨在研究各种皮肤病患儿与家长生活质量之间的关系,以进一步了解皮肤病的社会心理影响。我们对2020年11月至2022年1月期间到加利福尼亚州萨克拉门托市太平洋皮肤研究所就诊的100名儿科患者(7 - 18岁)和98名家长进行了横断面研究。使用儿童皮肤病生活质量指数(CDLQI)和家庭皮肤病生活质量指数(FDLQI)对患者及其家长进行评估。两个指数的最高分均为30分,分数越高表明生活质量受损越严重。在所有确诊患有各种皮肤病的患者和家长中,几乎在每种情况下,FDLQI评分(均值为7.8;n = 98)都超过了CDLQI评分(均值为5.8;n = 100)。痤疮是唯一CDLQI评分(均值为9.2;n = 43)高于FDLQI评分(均值为8.8;n = 42)的诊断。银屑病的FDLQI评分(均值为10.4;n = 9)与CDLQI评分(均值为5.9;n = 9)之间差异最大。我们的研究发现,患有皮肤病患儿的家长相比患儿本人,生活质量往往受损更严重。这可能是因为家长高度参与孩子病情的管理,且承担着与皮肤病相关的费用。这些发现呼吁临床医生进行更全面的评估,并为患者及其家长增加资源。