Department of Primary Care and Mental Health, University of Liverpool, Liverpool, UK.
School of Nursing, University of Central Lancashire, Preston, UK.
Health Expect. 2022 Oct;25(5):2034-2042. doi: 10.1111/hex.13261. Epub 2021 May 5.
Patients and public members are increasingly involved across the different stages of the research process. Their involvement is particularly important in the conception and design of applied health research where it enables people with lived experience to influence the aims, content, focus and methods.
To evaluate the process of coproducing a mental health-related research proposal suitable for funding through a national health research funding body.
Reflections from members of the public (n = 3) and academic researchers (n = 3) were collected through semi-structured interviews. Data were thematically analysed.
Thematic analysis identified five overarching themes: valuing the lived experience perspective; matching ambitions to the funded research process; 'Us and them': power, relationships and trust; challenges; and benefits of coproduction.
Our findings suggest that for successful coproduction of a research funding application, an open and trusting atmosphere, where equal relationships are established and a shared common goal agreed is essential. Although relationships with research professionals were framed by trust and mutual respect for some public advisors, others felt a sense of 'us and them'. With various tensions played out through interpersonal conflict, difficult conversations and disagreements, coproduction was not a positive experience for all stakeholders involved. Among the learning was that when collaboration of this kind is constrained by time or funding, genuine, impactful coproduction can be more challenging than is generally acknowledged.
患者和公众成员越来越多地参与到研究过程的不同阶段。在应用健康研究的构思和设计中,他们的参与尤为重要,因为这使有亲身体验的人能够影响目标、内容、重点和方法。
评估共同制定适合通过国家卫生研究资助机构资助的心理健康相关研究提案的过程。
通过半结构化访谈收集了 3 名公众成员和 3 名学术研究人员的反馈意见。对数据进行了主题分析。
主题分析确定了五个总体主题:重视生活经验视角;将雄心与资助研究过程相匹配;“我们和他们”:权力、关系和信任;挑战;以及共同创作的好处。
我们的研究结果表明,为了成功共同制作研究资助申请,必须营造开放和信任的氛围,建立平等的关系,并商定共同的目标。尽管一些公众顾问与研究专业人员之间的关系是基于信任和相互尊重的,但其他人则感到存在“我们和他们”的区别。由于通过人际冲突、艰难对话和分歧表现出各种紧张关系,共同创作对所有相关利益相关者来说并不是一次积极的体验。从中吸取的教训是,当这种合作受到时间或资金的限制时,真正有影响力的共同创作可能比人们普遍认为的更具挑战性。