Occupational Therapy Department, Queen Elizabeth II Jubilee Hospital, Coopers Plains, Qld, Australia.
Discipline of Occupational Therapy, School of Allied Health Sciences, Griffith University, Qld, Australia.
Aust Occup Ther J. 2021 Apr;68(2):180-192. doi: 10.1111/1440-1630.12704. Epub 2020 Oct 12.
Consumer engagement in research is becoming an ethical, political, and moral imperative. The aim of this scoping review was to provide a snapshot of the current status of the emerging area of consumer engagement in occupational therapy health-related research, as published in the Australian Occupational Therapy Journal.
A scoping review was conducted of all health-related original research published in the Australian Occupational Therapy Journal for 5½ years, plus Early View, as at June 2019. Eligible papers were examined for consumer engagement content which included any active choice or control by consumers, beyond being a research participant. A recognised six stage methodology was used with quantitative and qualitative data analysed. Two consumers collaborated in interpreting the data including finalising themes, leading theme naming, developing key discussion points, and producing recommendations.
Of the 123 eligible papers, 48 (39.02%) included consumer engagement. However, only two incorporated consumer engagement across all research phases-preparation, execution and translation. A total of 103 consumer engagement activities were charted and categorised across all papers. There were limited instances of consumer collaboration (14/103, 13.59%) or consumer-led research processes (15/103, 14.56%) reported. Four themes emerged: Parity in research partnerships; It's important to know the Who, What, When, How and So What of consumer involvement; Consumer engagement must be a two-way process-not a dead end street; and Meeting the challenge-being diverse and inclusive.
Comprehensive consumer-researcher partnerships may not be common-place in health-related occupational therapy research in the Australian Occupational Therapy Journal. This paper is a call to action. Occupational therapists must embrace consumer research partnerships as a demonstration of the key philosophies of enabling and empowering consumers and communities. Collaboration with two consumers in finalising data analysis, results interpretation and reporting added a diverse and valuable perspective.
消费者参与研究正成为一种道德、政治和道德的必然要求。本范围界定综述的目的是提供澳大利亚职业治疗杂志上发表的新兴消费者参与职业治疗健康相关研究领域的现状概述。
对 2019 年 6 月前在澳大利亚职业治疗杂志上发表的所有健康相关原始研究进行了范围界定综述，包括早期视图。符合条件的论文被检查了消费者参与内容，包括消费者的任何积极选择或控制，超出了作为研究参与者的范围。使用了一种公认的六阶段方法，对定量和定性数据进行了分析。两名消费者合作解释数据，包括确定主题、命名主题、开发关键讨论点和提出建议。
在 123 篇符合条件的论文中，有 48 篇（39.02%）包含消费者参与。然而，只有两篇论文在所有研究阶段（准备、执行和翻译）都纳入了消费者参与。总共记录并分类了所有论文中的 103 项消费者参与活动。报告的消费者合作（14/103，13.59%）或消费者主导的研究过程（15/103，14.56%）实例有限。出现了四个主题：研究伙伴关系中的平等；了解消费者参与的“何人、何事、何时、如何”非常重要；消费者参与必须是一个双向过程-不是死胡同；并迎接挑战-多样性和包容性。
在澳大利亚职业治疗杂志的健康相关职业治疗研究中，全面的消费者-研究人员伙伴关系可能并不常见。本文呼吁采取行动。职业治疗师必须将消费者研究伙伴关系作为赋予和授权消费者和社区的关键理念的体现。与两名消费者合作完成数据分析、结果解释和报告，增加了一个多样化和有价值的视角。
