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英国帕金森病患者在新冠疫情期间症状恶化和社会因素对其幸福感的共同影响。

The joint impact of symptom deterioration and social factors on wellbeing for people with Parkinson's during the covid-19 pandemic in the UK.

机构信息

Division of Health Research, Faulty of Health and Medicine, Lancaster University, Lancaster LA1 4AT, UK.

Division of Health Research, Faulty of Health and Medicine, Lancaster University, Lancaster LA1 4AT, UK.

出版信息

J Neurol Sci. 2023 Sep 15;452:120768. doi: 10.1016/j.jns.2023.120768. Epub 2023 Aug 15.

Abstract

The covid-19 pandemic and associated restrictions have had significant consequences for those living with chronic conditions such as Parkinson's. The restrictions in access to healthcare as well as reductions in social care, family support and community activities have led to decreases in physical and mental wellbeing. However, not everyone has been equally affected and the predictors of distress are currently being investigated worldwide. Here we use data from a UK survey conducted by the charity Parkinson's UK during Summer 2021 to look at physical and social predictors of wellbeing of people with Parkinson's. Specifically, we aimed to look at the combined effects of worsening physical symptoms, social isolation and loneliness on psychological wellbeing when controlling for age, gender and disease duration. The data from 612 participants were analysed using multiple regression analyses and showed that worsened physical symptoms, loneliness and social isolation each independently predicted wellbeing thus showing the impact of both physical symptoms and social factors. Improved access to healthcare and physical activity is needed to help improve physical health. However, addressing the social needs of people with Parkinson's is also important, and not only during a pandemic. Additional interventions may be needed to reduce social isolation and loneliness as there may be added barriers for people with Parkinson's which need to be considered.

摘要

新冠疫情及其相关限制措施对帕金森病等慢性病患者产生了重大影响。医疗保健的限制以及社会护理、家庭支持和社区活动的减少,导致了身心健康状况的下降。然而,并非每个人都受到同等影响,目前全世界都在研究困扰的预测因素。在这里,我们使用英国慈善机构帕金森氏症英国在 2021 年夏季进行的一项调查的数据,研究帕金森病患者幸福感的身体和社会预测因素。具体来说,我们旨在研究在控制年龄、性别和疾病持续时间的情况下,身体症状恶化、社会隔离和孤独感对心理健康的综合影响。使用多元回归分析对 612 名参与者的数据进行了分析,结果表明,身体症状恶化、孤独和社会隔离都独立地预测了幸福感,这表明身体症状和社会因素都有影响。需要改善医疗保健和体育锻炼的机会,以帮助改善身体健康。然而,解决帕金森病患者的社会需求也很重要,而且不仅仅是在大流行期间。可能需要额外的干预措施来减少社会隔离和孤独感,因为帕金森病患者可能需要考虑更多的障碍。

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